2011 Winners

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Thundering Thurston Award

This award is given to the child/ren who received the most overall votes in the photo contest in memory and honor of Thurston Mossholder, Preemie Power Winner 2010. This year’s winner with a whopping 4,162 votes is Scrappy Doo!  See his original entry and read the comments that friends and family have left for him.

Chiron W

Chiron W

Scrappy Doo

  • Current age: 9.5 months old
  • Weight at birth: 3 lbs, 1 oz (1402 grams)
  • Weeks Gestation: 29 weeks, 6 days
  • NICU stay: 53 days

Diagnosis, surgeries, complications?

Really just prematurity: respiratory support necessary, A&Bs, and nutritional support. A little hyperbilirubinemia and GERD thrown in to be like big brother and that’s pretty much it. His prematurity was a result of the inter-utero death of his twin sister.

Why Should Your Child Be Recognized as Preemies of the Year?
Chiron could serve as Preemie of the Year not due to his uniqueness, but due to his ordinariness.

Chiron was born a day shy of 30 weeks after almost six weeks of preterm labor and hospital bedrest due to the interutero death of his twin sister, Aurelia.

He suffered nothing unique. He didn’t contract any unusual conditions. He simply was born too early and too small.

He received support to eat, to breathe, to regulate his body temperature and to continue to develop. He exists because of the constant vigilance and care of neonatal staff every day, not just in crisis situations.

Chiron is a living model of what we are all seeking to provide for all preemies and thus I believe serves as a powerful model in the role of Preemie of the Year.

Using Three Or More Characteristics of a Super Hero, Please Describe Your Child.

The main characteristic that qualifies Chiron to serve as a superhero is his scrappiness. He was nicknamed Scrappy Doo by one of his NICU nurses when he was just a couple weeks old because she said he was always stronger than they anticipated. Yes, he was small, but he could do things that the staff weren’t used to babies of his age and size doing. Sometimes this was good, like breathing just fine when his CPAP came off while they waited for a respiratory tech to be free to fix it rather than requiring bagging or anything. Sometimes it was neutral, like requiring three nurses to hold him for a blood draw while he weighed under four pounds. Sometimes it was negative (from the perspective of a nurse), like when he required nine NG tubes to be placed in the course of one day despite only having eight feeds a day!

Chiron remains scrappy to the day. He has severe reflux and allergic enterocolitis and so still weighs under 15 pounds. Yet, he can require multiple people to hold him down for bloodwork or to place an IV. Yet, he can stand supported by a chair. He is small, but he is scrappy.

I believe it is the superhero way to take something that might be viewed as a weakness, small size, and instead turn it into a strength.

Resilience is the second characteristic that I think supports the designation of Chiron as a superhero. Whether it’s his happy demeanor in dealing with vomiting a couple dozen times a day, adjusting to a NICU nurse changing multiple things in his usual operating procedures at the same time or continuing on as an active, playful boy despite critically low levels of iron, Chiron refuses to succumb to anything we have seen thus far. This ability is perhaps what is necessary to take one from hero to superhero.

Finally, Chiron has the characteristic of a superhero in that he has a sidekick. His older brother has been devoted to him from the day he was born, gently touching the top of Chiron’s head exactly as he was instructed, throughout his entire time in the NICU, at home and later hospital stays. And true to a sidekick relationship, Chiron has reciprocated the relationship with his big brother being the cause of his first smile, his first laugh and his first giggling episode. He derives strength and desire to stretch his limits and do new things to be closer to and more like his brother.

Scrappy Doo he is.

Age Category 6+ Years

Ikey and Reagon K

Ikey and Reagon K

Ikey the Invincible & Resilient Reagon

  • Current age: 8 years old
  • Weight at birth: 1 lb, 15 oz each
  • Weeks gestation: 26 weeks, 5 days
  • Time in the NICU: 97 and 98 days

Diagnosis, surgeries, complications?

Reagon: Grade 3 bleeds in both sides of brain, PIE, multiple blood transfusions, constant As and Bs, PDA, asthma.

Ikey: mild ROP, bilateral inguinal hernia repair, multiple blood transfusions, constant As and Bs, PDA, asthma.

Why Should Your Children Be Recognized as Preemies of the Year?
These little boys were not supposed to do as well as they have.  I had been in the hospital for the week before they were born being treated with magnesium sulfate to stop the labor.  Contractions subsided, so I was discharged on a Thursday morning.  I went home on strict bedrest (had already been on bed rest since 24 weeks.)  Four hours later, with severe pain, my husband rushed me to the hospital, 10cm on arrival, and within 21 minutes, Ikey and Reagon were born by emergency c-section.  They had an extremely rough start, and several weeks of the unknown.

Here are a couple of things they endured while in the hospital. Doctors had to work to collapse Reagon’s lung to hopefully relieve him of all of the pockets of fluid in it (PIE), at the same time as watching his grade 3 bleeds in his brain.  He endured so many As and Bs in the hospital, that there were not even spots in the chart to record them all.  He was finally discharged from the NICU after three months, only to stop breathing in my arms at home two days later.  He had an undiagnosed UTI and was septic.  He was rushed to Children’s, which was at Brack at the time, and was revived.  He was a very sick little baby. Now, he is a robust 60 pound 8 year old third grader, who plays tennis, baseball, football, and rides his bike to school.

Ikey endured multiple blood transfusions. When we would arrive at the NICU to visit the babies, Ikey would be a dark red color, and we knew he had received more blood that day.  He had many more tranfusions than his brother.  He had minor ROP, and during his last week in the NICU, when he was stable enough, he had bilateral inguinal hernia repair.  He, too, had constant As and Bs during his stay.  Too many to count.  He now is a whopping 55 pound 8 year old third grader.  He is also very active and loves football, baseball and tennis.

When the boys were admitted to the NICU, they were put in the far back corner of bay 6.  They stayed in that spot for two and a half months.  They were never feeders and growers.  They were just trying to breathe.  They are both amazing, smart, humorous, athletic, and just wonderful.  They love to play sports with their big brother Walker, age 9 (35 weeker) and their friends.  They are just a delight to be around.

Why should these little boys be recognized as “Preemies of the Year”?  Well, they are just remarkable little boys who have been through far more than most people will ever go through in their entire lives.  And, thanks to the fantastic doctors and nurses at the Seton NICU, they are here with us today and could not be doing better!

Using Three Or More Characteristics of a Super Hero, Please Describe Your Children.

Ikey: invincible, adventurous, extraordinary.

Reagon: resilient, courageous, amazing.

Age Category 1+ to 5 Years Old

Camdyn and Cade H

Camdyn and Cade H

One Pound Wonders

  • Current age: 18 months
  • Weight at birth: 1 lb, 2 oz and 1 lb, 8 oz
  • Weeks gestation: 24 weeks
  • NICU stay: 133 days

Diagnosis, surgeries, complications?

Camdyn – PDA ligation, grade II head bleed, collapsed lungs, chronic lung disease, intubated 5 weeks

Cade – PDA ligation, grade II head bleed, pneumothorax (air pocket in lungs), paralyzed vocal cord, g-tube surgery, plagiocephaly, chronic lung disease, vented 5 weeks

Why Should Your Children Be Recognized as Preemie of the Year?
The One Pound Wonders came into this world 16 weeks early weighing a mere 1 lb 2 oz (Camdyn) and 1 lb 8 oz (Cade). From the first day of life, they had to valiantly fight off all the evil NICU villains, those malicious micro-preemie harmers – IVH, PDA, ROP, CLD, and the gang. After 133 days of continuous fighting, they left the NICU battlefield. The One Pound Wonders encountered still more battles. They spent over a year fighting off the evil Feeding Fiend who caused them both to deal with major feeding issues. Cade used his magic g-tube portal to gain superhero strength to eventually conquer this evil enemy. Camdyn, although tiny, showed her fierce superhero powers to overcome this enemy on her own. The One Pound Wonders continue to gain strength and power in their superhero training camps, aka occupational, physical, and speech therapy weekly. They have left the world in awe of their amazing powers – the power to eat, breathe, walk, talk, and most importantly, live after being given only a 30-40% chance of surviving! The One Pound Wonders have proven to the world that miracles exist.

To follow their progress, visit our blog at www.camdyncade.blogspot.com.

To watch a slideshow of their incredible journeys, visit http://www.youtube.com/watch?v=il0NdAfvzQI.

Although it would be a huge honor to be recognized as Preemies of the Year, we are entering the contest in hopes of being recognized with the Thundering Thurston award (entry with the most votes). We need your votes to help us achieve this. The amazing Thundering Thurston was in alliance with our One Pound Wonders in the same NICU. I am honored to be friends with Thurston’s incredible mother. We walked through our NICU journeys together supporting one another along the way. We would be so honored to win the Thundering Thurston award in memory of this amazing baby boy who touched the lives of so many.

Using Three Or More Characteristics of a Super Hero, Please Describe Your Children.

The One Pound Wonders have demonstrated their superhuman powers with their strength – they had to endure so much pain throughout their NICU journey, their endurance – they work so much harder to accomplish milestones that come easily to others, and their perseverance – they never gave up even though the odds were stacked strongly against them. They will continue to leave the world in awe and wonder at all they will accomplish!

Age Category 0 to 1 Year

Chiron W

Chiron W

Scrappy Doo

  • Current age: 9.5 months old
  • Weight at birth: 3 lbs, 1 oz (1402 grams)
  • Weeks Gestation: 29 weeks, 6 days
  • NICU stay: 53 days

Diagnosis, surgeries, complications?

Really just prematurity: respiratory support necessary, A&Bs, and nutritional support. A little hyperbilirubinemia and GERD thrown in to be like big brother and that’s pretty much it. His prematurity was a result of the inter-utero death of his twin sister.

Why Should Your Child Be Recognized as Preemies of the Year?
Chiron could serve as Preemie of the Year not due to his uniqueness, but due to his ordinariness.

Chiron was born a day shy of 30 weeks after almost six weeks of preterm labor and hospital bedrest due to the interutero death of his twin sister, Aurelia.

He suffered nothing unique. He didn’t contract any unusual conditions. He simply was born too early and too small.

He received support to eat, to breathe, to regulate his body temperature and to continue to develop. He exists because of the constant vigilance and care of neonatal staff every day, not just in crisis situations.

Chiron is a living model of what we are all seeking to provide for all preemies and thus I believe serves as a powerful model in the role of Preemie of the Year.

Using Three Or More Characteristics of a Super Hero, Please Describe Your Child.

The main characteristic that qualifies Chiron to serve as a superhero is his scrappiness. He was nicknamed Scrappy Doo by one of his NICU nurses when he was just a couple weeks old because she said he was always stronger than they anticipated. Yes, he was small, but he could do things that the staff weren’t used to babies of his age and size doing. Sometimes this was good, like breathing just fine when his CPAP came off while they waited for a respiratory tech to be free to fix it rather than requiring bagging or anything. Sometimes it was neutral, like requiring three nurses to hold him for a blood draw while he weighed under four pounds. Sometimes it was negative (from the perspective of a nurse), like when he required nine NG tubes to be placed in the course of one day despite only having eight feeds a day!

Chiron remains scrappy to the day. He has severe reflux and allergic enterocolitis and so still weighs under 15 pounds. Yet, he can require multiple people to hold him down for bloodwork or to place an IV. Yet, he can stand supported by a chair. He is small, but he is scrappy.

I believe it is the superhero way to take something that might be viewed as a weakness, small size, and instead turn it into a strength.

Resilience is the second characteristic that I think supports the designation of Chiron as a superhero. Whether it’s his happy demeanor in dealing with vomiting a couple dozen times a day, adjusting to a NICU nurse changing multiple things in his usual operating procedures at the same time or continuing on as an active, playful boy despite critically low levels of iron, Chiron refuses to succumb to anything we have seen thus far. This ability is perhaps what is necessary to take one from hero to superhero.

Finally, Chiron has the characteristic of a superhero in that he has a sidekick. His older brother has been devoted to him from the day he was born, gently touching the top of Chiron’s head exactly as he was instructed, throughout his entire time in the NICU, at home and later hospital stays. And true to a sidekick relationship, Chiron has reciprocated the relationship with his big brother being the cause of his first smile, his first laugh and his first giggling episode. He derives strength and desire to stretch his limits and do new things to be closer to and more like his brother.

Scrappy Doo he is.

Preemie Power Team Fundraising Contest

This award is given to the team that raised the most money on behalf of Hand to Hold’s Preemie Parent Empowerment Project.  This year’s winner who raised $3,280 is Scrappy Doo and his X-Men!  See his original entry.

 

Site last updated May 23, 2017 @ 3:00 pm; This content last updated July 26, 2012 @ 9:59 pm