More about the NICU Resource Library

How Hand to Hold’s NICU Resources are Created and Reviewed:

Hand to Hold logoNICU parents need timely, reliable information and support if they are going to care for their babies. Hand to Hold’s Resource Library is a collection of printable, color handouts in English and Spanish containing valuable information which will empower parents to more effectively cope with their NICU experience.  The handouts cover a variety of topics important to NICU families, from antepartum care, to bonding with the medically-fragile child, to discharge and bereavement.

Hand to Hold’s NICU Resource Library greatly enhances hospitals’ educational offerings for parents and meets the standards for patient education and engagement of both The Joint Commission and the American Academy of Pediatrics.  In addition, the handouts we offer are in alignment with principles of both trauma-informed care and family-centered care.

Hand to Hold’s NICU Resource Library has been endorsed by the National Perinatal Association as a, “reliable, high-quality collection of educational handouts for parents of NICU babies.”

NPA endorsed(cont.) “Our members carefully reviewed all the documents contained in the Resource Library and found them to be clearly written, based on sound principles of best practices in neonatology, and engaging towards parents. In addition, the handouts are in alignment with principles of both Trauma-Informed Care and Family-Centered Care. Your Editorial Board of respected professionals in multiple disciplines as well as NICU parents has achieved a great feat of producing easily understandable informational resources that also serve to support parents through the emotionally challenging NICU experience.”

See the full text here.

All articles are written to comply with the Centers for Disease Control’s health literacy standards and reviewed by an editorial panel comprised of specialists in the fields of neonatal and pediatric care as well as parent support, including neonatologists, pediatricians, social workers, dieticians, lactation consultants and clinical psychologists and other specialists from across the country. Information presented is based on current best practices as described by:

American Congress of Obstetricians and Gynecologists

National Perinatal Association

National Association of Neonatal Nurses

National Association of Neonatal Nurse Practitioners 

Association of Women’s Health, Obstetric and Neonatal Nurses

American Academy of Pediatrics

American Speech-Language-Hearing Association

National Association of Neonatal Therapists

National Association of Perinatal Social Workers

La Leche League International

International Lactation Consultant Association

United States Lactation Consultant Association

Academy of Breastfeeding Medicine

Eunice Kennedy Shriver National Institute of Child Health and Human Development 

National Dissemination Center for Children with Disabilities

American Psychological Association

To find out more about Hand to Hold’s Policies and Procedures, including our editorial practices visit our Policies page. If you have specific questions contact Hand to Hold’s Executive Director, Kelli Kelley (Kelli [at] handtohold [dot] org) or our Program Director, Jennifer Beatty (Jennifer [at] handtohold [dot] org).

If you have a questions for Hand to Hold’s NICU Outreach Coordinator, Contessa Weinheimeremail her at Contessa [at] handtohold [dot] com or submit your question using this form.

Sources Consulted:

acog• ACOG. Practice Bulletin No. 31: Assessment of risk factors for preterm birth.

American College of Obstetricians and Gynecologists; Committee on Practice Bulletins—Obstetrics. Obstetrics & Gynecology. 2001 Oct; 98 (4): 709–716.

• ACOG. Practice Bulletin No. 127: Management of preterm labor.

American College of Obstetricians and Gynecologists; Committee on Practice Bulletins—Obstetrics. Obstetrics & Gynecology. 2012 Jun;119(6):1308-17.

• National Perinatal Association’s 33rd Annual Conference: Prematurity and Maternal Health. October 18, 2012. Washington C. Hill, MD, FACOG. “Doing All We Can to Detect Preterm Labor Early and Prevent Preterm Birth.

National Perinatal Association.

National Perinatal Association Logo• National Perinatal Association’s 33rd Annual Conference: Prematurity and Maternal Health. October 20, 2012. Washington C. Hill, MD, FACOG. “What’s New with Commonly-Used Drugs in Pregnancy: Steroids,Progesterone, and MgSO4.”

National Perinatal Association.

• Parenting in the Neonatal Intensive Care Unit

Lisa M. Cleveland. Journal of Obstetric, Gynecologic, & Neonatal Nursing. Volume 37, Issue 6, pages 666–691, November/December 2008

• Parenting Based on the Developmental Progression of Preterm Infants.

by Respironics.

• American Academy of Pediatrics Red Book

Online. 29th Edition.

• Developmental Care of Newborns and Infants: A Guide for Health Professionals.

NANN bookEdited by Carole Kenner, PhD RNC-NIC FAAN, and Jacqueline M. McGrath, PhD RN FNAP FAAN, second edition. NANN.

• Cue-based Co-regulated Feeding in the Neonatal Intensive Care Unit: Supporting Parents in Learning to Feed Their Preterm Infant

Catherine S. Shaker, MS/CCC-SLP, BRS-S. Newborn and Infant Nursing Reviews. Volume 13, Issue 1, March 2013, Pages 51–55

• A synactive model of neonatal behavioral organization: Framework for the assessment of neurobehavioral development in the premature infant and the support of infants and parents in the neonatal intensive care environment.

Als, H. (1986). In Sweeney, J. K. (Eds), The high-risk neonate: Developmental therapy perspectives (pg. 3-53). Binghamton, NY: The Haworth Press.

• Changing  feeding outcomes to reflect infant–driven feeding practice.

Ludwig, S.M., Waitzman, K.A.  (2007). Newborn and Infant Nursing Reviews. 7(3). 155-160.

• Ad libitum or demand/semi-demand feeding versus scheduled interval feeding for preterm infants.

McCormick, F. M., Tosh, K., & McGuire, W. (2010). Cochrane Database of Systematic Reviews. doi: 10.1002/14651858.CD005255.pub2

• Multidisciplinary Guidelines for the Care of Late Preterm Infants

Multidisciplinary Guidelines for the Care of Late Preterm InNational Perinatal Association in collaboration with many partners across the spectrum of care createdmultidisciplinary guidelines that provide evidence-based recommendations for the care of late preterm infants. These guidelines give healthcare providers and others a roadmap that focuses attention on the unique needs of late preterm infants from birth through early childhood, helping to ensure potential health risks aren’t overlooked.

• Update on Immunizations Commonly Used in the NICU

Pamela Whitlow MSN, NNP-BC, CPNP, Paula L. Forsythe. Advances in Neonatal Care. June 2011 .Volume 11 Number 3. Pages 173 – 179.

• The Immune Consequences of Preterm Birth

Jacqueline M. Melville and Timothy J. M. Moss. Frontiers in Neuroscience. May 2013. 7:79.

• Hospital discharge of the high-risk neonate

Committee on Fetus and Newborn (2008). Pediatrics, 122(5), 1119-1126. doi: 10.1542/peds.2008-2174

• Parental Coping in the Neonatal Intensive Care Unit

Richard J. Shaw, Rebecca S. Bernard, Amy Storfer-Isser, William Rhine, Sarah M. Horwitz Journal of Clinical Psychology in Medical Settings. June 2013, Volume 20, Issue 2, pp 135-142;

• Prevention of Traumatic Stress in Mothers With Preterm Infants: A Randomized Controlled Trial

Richard J. Shaw, Nick St John, Emily A. Lilo, Booil Jo, William Benitz, David K Stevenson and Sarah M. Horwitz. R.; originally published online September 2, 2013. Pediatrics. DOI: 10.1542/peds.2013-1331

• Delivering perinatal psychiatric services in the neonatal intensive care unit.

Hatters Friedman, S., Kessler, A., Nagle Yang, S., Parsons, S., Friedman, H. and Martin, R. J. (2013), Acta Paediatrica, 102: e392–e397. doi: 10.1111/apa.12323

• Toolkit for the Follow-Up Care of the Premature Infant

Toolkit for the Followup of the Premature InfantThe Toolkit for the “Follow‐up Care of the Premature Infant” is a multidisciplinary, electronic, interactive toolkit with a web‐based interface, which has been developed over the last five years by MedImmune. The National Initiative for Children’s Healthcare Quality (NICHQ) conducted the beta testing of this Toolkit and was involved in its further development. The Toolkit is organized into 6 sections: Introduction, Discharge Planning, Outpatient Follow‐up Care, Parent/Caregiver, Tools, and References. It has been developed for healthcare providers to assist in the transition of the premature infant from hospital to outpatient care, to facilitate accurate transfer of pertinent patient information and to help provide evidence‐based practical measures for consideration in the care of the premature infant. The Toolkit provides age‐specific information that highlights what is unique for the premature infant from birth to 12 months corrected age. The goal is to help improve the care and outcomes of premature infants. The Toolkit can help facilitate care of the premature infant by general pediatricians and other healthcare providers. These tools are intended to complement the care healthcare providers currently provide; however, the Toolkit is not intended to be a substitute for or an influence on the independent clinical judgment of the healthcare professional.

• Guidelines for health care professionals supporting families experiencing perinatal loss.

J van Aerde; Canadian Paediatric Society, Fetus and Newborn Committee. Paediatric Child Health 2001;6(7):469-77. Reaffirmed: Jan 30 2012. 

•  Resolve Through Sharing (RTS) Perinatal Palliative Care Position Paper.

Limbo R, Toce S, Peck T. Resolve Through Sharing Position Paper on Perinatal Palliative Care.La Crosse, WI: Gundersen Lutheran Medical Foundation, Inc; 2008/2009.

• Caring for Families Experiencing Stillbirth.

Caring for Families Experiencing Stillbirth: A unified position statement on contact with the baby. With 20 international contributors representing 17 organizations, the statement provides an evidence-based, clinically relevant approach to caring for families whose baby is stillborn. 

• NANN Palliative Care for Newborns and Infants.

The National Association of Neonatal Nurses published position statement #3051 – Palliative Care for Newborns and Infants.

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