NICU Library FAQ

Kate with the Nurse, Photo Courtesy Haller FamilyWhat is the NICU Resource Library?

Hand to Hold’s NICU Resource Library is a collection of education materials you can  print and share with the families you serve. Hand to Hold, a nonprofit national parent support organization, created the NICU Resource Library for Neonatal Intensive Care Units (NICUs) and Special Care Nurseries to complement and extend the education hospitals provide their families.

At launch, the NICU Resource Library contains 25 printable, color handouts in English and Spanish on a variety of topics important to NICU families – from antepartum care, to bonding with your medically-fragile baby to discharge and bereavement. These materials give parents the information they need to be competent care givers and effective advocates for their babies. They help facilitate conversations between parents and their baby’s care providers and promote positive and productive communication.

Who writes the articles?

Hand to Hold’s professional writers – who are also former NICU parents – research, write, and meticulously source each article. All articles are written to comply with the Centers for Disease Control’s health literacy standards and reviewed by an editorial panel comprised of specialists in the fields of neonatal and pediatric care as well as parent support, including neonatologists, pediatricians, social workers, dieticians, lactation consultants and clinical psychologists and other specialists from across the country.

  READ MORE ABOUT HOW HAND TO HOLD’S NICU RESOURCE LIBRARY WAS DEVELOPED

When will the NICU Resource Library add more titles?

Hand to Hold plans to release new titles to the library each quarter. Hand to Hold will prioritize requests for upcoming topics from member hospitals.

How much does the NICU Resource Library cost?

Annual subscription to the NICU Resource Library is $995. Hospitals may print-on-demand without limit as long as their subscription  is active.

Does Hand to Hold pay for printing?

No. Printing costs are the responsibility of the hospital. Articles can be printed in black and white or in color.

After I subscribe to the NICU Resource Library what will I receive?

Once your membership has been processed, you will receive access to the NICU Resource Library through a unique username and password.  Your hospital will also receive samples of other Hand to Hold resource materials you can order for free for your NICU including Hand Prints, Hand to Hold’s print newsletter available in English and Spanish.

Is Hand to Hold active in the NICU support community?

Yes, in fact, Hand to Hold was the recipient of the 2012 National Perinatal Association’s Becky Hatfield Award for NICU Parent Support for our innovative and effective approach to NICU parent support.  Hand to Hold is an active member of the National Perinatal Association and its Family Advocacy Network.  Hand to Hold is a founding member of the Preemie Parent Alliance and a member of the  National Premature Infant Health Coalition. Hand to Hold leaders are regularly invited to speak at local, regional and national conferences and grand rounds sharing a parent’s experience, long-term effects that trauma has on the family unit after a NICU stay or loss, and effective ways to support families through a NICU experience. See more partnerships and collaborations and where we’ve been making connections.