Captain BAM!

Bryce M. ~ Super Hero Alias: Captain BAM!

Bryce MAge: 2-1/2 years old
Weight at birth: 1 lb, 8 oz
Weeks gestation: 24 weeks
Time in the NICU: 150 days

Diagnosis, surgeries, complications?

24 week Micropreemie, Grade III & IV brain bleeds, Hydrocephalus, VP shunt, Retinopathy of Prematurity, Cortical Visual Impairment, Cerebral Palsy, Developmental Delay, Over a dozen surgeries to date

Why Should Your Child Be Recognized as Preemie of the Year?
A true preemie hero, Captain BAM! overcame seemingly insurmountable odds: being born at home, severe brain hemorrhages, struggling for months in the NICU to learn to breathe without a machine, and much more.  Captain BAM! is the living, breathing symbol of tenacity, bravery and the power of a mighty will to live!

Using Three Or More Characteristics of a Super Hero, Please Describe Your Children.

Vowing to defy even the scariest of odds, Captain BAM! faces all evils head on, literally – brain bleeds, hydrocephalus and even multiple brain surgeries.

He laughs in the face of medical adversity as he continues to meet milestones never imagined for him.

And though his vision may be imperfect without his Blue Spectacles of Might, his heightened hearing prevents evil tickle monsters or boogeymen from sneaking up unannounced.

Perhaps Captain BAM’s most formidable super power of all though is his innate ability to charm. He can charm a needle-toting nurse or a stranger at dinner with a single glance and a mere glimpse of his intoxicating smile.

But have no fear, Captain BAM! is here. He’ll brighten your day, instill hope in your heart and make your thankful for all that you’ve got!

What advice do you have for future NICU parents?

Be active in the Hand to Hold network, it’s an invaluable tool for navigating the crazy, unpredictable post-NICU life.

Describe how Hand to Hold’s services are meaningful to you and future families. What kind of support would have helped you most during your journey?

Being able to pick up a phone, send an email or have coffee with another mom who knows and understands my fears, my hurts, my little triumphs and my huge disappointments is the only real support I need that my friends and family just can’t offer.
Hand to Hold gives us the tools necessary to make the best decisions we can for our Bryce while also making the process of raising a preemie feel less isolating. I can honestly say that I don’t know where I would be today without the support and resources that Hand to Hold has given my family.

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