Ninja Sophia

Sophia K. ~ Super Hero Alias: Ninja Sophia

Sophia KAge: 2 years
Weight at birth: 1lb 9oz
Weeks gestation: 24 weeks
Time in the NICU: 103 days

Diagnosis, surgeries, complications?

Chronic Lung Disease, PDA, Oxygen dependent, malnutrition, hernia, Retinopathy of prematurity (eye sugery), vision loss, oral hyposensitivity & tactile hypersensitivity

Why Should Your Child Be Recognized as Preemie of the Year?

Sophia has always been a fighter, even came out kicking and trying to cry. She has 3 therapies each week & has come so far for her little age of 2 (21 months adjusted). She continue to give others hope by visiting the Ronald McDonald House & Room where other preemie parents stay while their children are in the NICU. Not to mention being inspiration for preemie parents on Facebook. When you tell people you have a 24 week old and see how far she has come it really does give hope to other who are just starting their rollercoaster ride.

Using Three Or More Characteristics of a Super Hero, Please Describe Your Child

My Sophia is known as the little Ninja because she is such a strong little fighter who conquers any developmental/medical issues she has.

What advice do you have for future NICU parents?

You are your child’s best advocate, it’s important to be there regularly in the NICU not only for the bonding/kangaroo care but to make sure things are going right. And if you need help (emotional/informational) don’t be afraid to ask anyone because this is a very hard time & they want to help so let them.

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Feelings of Grief, Gratitude and Healing

Neonatal Maternal Transportby Cindy Marks

After a difficult pregnancy, my son was delivered nearly 6 weeks early due to the fact that I had HELLP Syndrome. He was medevaced to a larger hospital while I had to stay behind as a patient at the smaller hospital. For 30 days, my husband, one year old daughter, and I traveled back and forth from our home to the larger hospital to visit our “Superman.” When he was finally discharged, I thought that everything was over and life would continue as normal. I was wrong.

For the first year of his life, I barely had time to think about what had happened with his delivery and our NICU experience because my life was consumed with taking care of two small children. When thoughts of what had happened would creep into my mind, I would shove them back because it was never a good time to think about them. I was taken by surprise on his first birthday when feelings of grief snuck in with my happiness. I felt something must be wrong with me to feel sad since everything turned out okay. Again, I pushed it back.

Eight months after his first birthday, my friend had a premature baby in the NICU. I wanted to provide her with my support, so I was forced to face pictures of the NICU, feeding tubes, and everything else that goes along with the experience. Her experience turned out different than mine, and her precious baby boy passed away a few days later. For the first time, I cried—hard. I cried for my friend and the injustice of what had happened, and I cried for my boy who also had been in the NICU. I was no longer able to push away what had happened. It was right there staring me in the face, and I had to face it.

A Google search led me to Hand to Hold. Laura Romero immediately responded to my request and was available to provide me insight to the unique feelings I had. She matched me up with my mentor, Kimberly, and the two of us talked on the phone. I told Kimberly of how I had tremendous feelings of guilt. I felt guilty that my son had to be delivered early because of my syndrome and had to be in the NICU. I felt unworthy of my sadness of the experience because my son was healthy and alive. I couldn’t figure out why I wasn’t “over” the whole experience and able to just move on with life. Kimberly shared her experience with me. A key thing she told me was that even after 8 years, she still has moments of sadness but that those moments are briefer and further apart. She told me that you don’t ever have to get over it. It’s a traumatic experience that happened to your child. You are that child’s mother and you never want anything tragic to happen to your child. And when something tragic does happen, it’s okay to feel sad—even years later.

My son just celebrated his second birthday. A week before his birthday, I found myself curious and wanting to see his NICU pictures which I couldn’t look at before because of tremendous sadness. As I was looking at the first days of my precious boy, I realized something . . . I was smiling. Today as I watch my son running around the house playing with his sister, my heart swells with gratitude and healing.

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Little Fighter Johnny

John S. ~ Super Hero Alias: Little Fighter Johnny

John SAge: 3 months
Weight at birth: 1lb 4 oz
Weeks gestation: 24 weeks, 6 days
Time in the NICU: 90 days and counting

Diagnosis, surgeries, complications?

underdeveloped lungs, surgery on major vessel to heart, blood clot, hernias, had to be revived at birth, was put under the light, has hypospadias

Why Should Your Child Be Recognized as Preemie of the Year?

John S. is definitely a miracle child. I had went to a doctor at 2 months and they told me I was not pregnant so I treated it as if I was not until I was 5 months pregnant and started showing. From there I had nothing but complications. When I went to deliver I never knew you could have a baby that small, and I was only a little over six months. He has already taught me so much in the past 3 months. He showed me how strong a little guy can be. He has been through so much and is still fighting. I call him my little fighter, and the nurses say he has spunk. He has so much personality and sometimes he will give you that look like “what the heck are you doing to me?”, but at the same time a look of encouragement and we can get through this together. I spend all day everyday at the hospital with my son, and its amazing how much they can improve day to day. I have learned so many medical terms, and of other people’s situations, and am aware now of premature birth. He has also taught many people in my family the power of hope and prayer, he is definitely my hero. There is no way I could ever go hrough what he has been through. I have so many nurses say I am lucky that he is doing so well for how small he was born, and I know it. He is only on one liter of oxygen right now, and needs to master the bottle. He is currently 4 pounds and 14ozs. [Read more...]

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Miracle Twins

Aiden and Ethan S ~ Super Hero Alias: The Miracle Twins

Aiden and Ethan S.

  • Current age: 6 years
  • Weight at birth: 1lb 14oz/1lb 6oz
  • Weeks gestation: 24 weeks
  • Time in the NICU: 150 days

Diagnosis, surgeries, complications?

Micro-preemie twins:  PDA (resulting in heart surgery), ROP (resulting in eye surgery), Failure to Thrive (resulting in G-tube surgery), Double Hernia (resulting in hernia repair surgery), Chronic Lung Disease (resulting in 1 year on O2), brain hemorrhages, seizures, cerebral palsy, rickets, sepsis, social sensitivity.

Why Should Your Children Be Recognized as Preemies of the Year?

My twins should be recognized as Preemies of the Year because they have struggled so hard for the last 6 years to overcome unbelievable odds and obstacles.  They were given a 5% chance of surviving and being healthy – and after 6 months in the NICU, 3 years in isolation, numerous surgeries and hospitalization, and years of therapy – I’m so happy to say that they’re doing amazingly well and just started kindergarten.

They’ve had to work so hard during their short lives just to live and to grow, I feel like their childhood and opportunities to just have fun have really been affected.  As parents facing medical bills that have run in the hundreds of thousands of dollars, we haven’t been able to focus on much other than just providing the basics.

This Disneyland trip would be our first family event as a “normal” family and would mean the world to all of us.

Using Three Or More Characteristics of a Super Hero, Please Describe Your Children.

Aidan and Ethan are more than just strong, brave and resilient.  They are inspirational to all that meet them.  Not only did they encounter so many obstacles in their lives – they have gone on to test on the genius scale.  They are absolutely brilliant.  Both boys taught themselves how to read at age 2. Now they are studying science, math, and foreign languages.  They are truly inspirational and I believe they will go on to do amazing things – possibly even cure prematurity!

Note (posted 10/29/12):

I just wanted to sent you a note saying thanks, and add a personal story around my boys’ entry “Miracle Twins”.

Aidan & Ethan were born at 24 weeks, had a 5% chance of surviving and being healthy, and spent 6 months in the NICU and 3-1/2 years in isolation.  Needless to say, it’s been a LONG journey for them (and us!)

It was kind of a family joke while they were in the NICU, I would tell them “just survive this and I’ll take you to Disneyland.”  As they got older and had more complications, more surgeries, and more hospitalizations, I continued to tell them “someday you’ll be healthy and we’ll go to Disneyland”.  Disneyland got to be the trigger of healthy.

This year, Ethan had his feeding tube removed.  For the first time ever my boys are tube/wires/monitor free!  And of course –  now they’re saying It’s time for Disneyland! I feel like this competition couldn’t have come at a better time for us.  My kids are finally healthy and they deserve this so much.  This would allow us to give them this experience.

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Cowboy Cole

Cole C ~ Super Hero Alias: Cowboy Cole

Cole CAge: 5 years
Weight at birth: 1 lb 5 oz
Weeks gestation: 24 weeks
Time in the NICU: 147 days

Diagnosis, surgeries, complications?

Bronchopulmonary Dysplasia, Grade 2 Bilateral Brain Bleed, PDA ligation surgery, Hernia surgery, Intubated for four months.

Why Should Your Child Be Recognized as Preemie of the Year?

Much to our surprise, Cole was born on a hot day in mid June instead of an autumn day in early October.  Weighing only 1 lb. 5 oz. and having very underdeveloped, sick lungs, Cole was given a 20% chance of survival.  We were told that if he did live, there was only a 5% chance that he would not have life long medical problems.  His stay in the NICU would last until his due date or beyond.  Born in Beaumont, Cole was transported to Texas Children’s Hospital by the Kangaroo Crew.  He was diagnosed with BPD, a chronic lung disease common to premature babies.  During his stay at TCH, he had a grade II bilateral brain bleed, PDA ligation surgery, risk of ROP, and hernia surgery.  He was almost a month old when we were finally able to hold him.  He was intubated four out of the five months he spent at TCH and then received oxygen through a nasal cannula.  A week before Thanksgiving, Cole was released from TCH.  At home, he continued to require oxygen through a nasal cannula and received supplemental nutrition with an NG feeding tube until after his 1st birthday.  He also received occupational and feeding therapy.  Cole is now an energetic five year old and loves the same things that other little boys his age enjoy.  He has a fun loving personality and inspires everyone he meets.  If you met him today, you would never guess all that he has been through.  He is truly our hero!

Using Three Or More Characteristics of a Super Hero, Please Describe Your Child.

Cole is FEARLESS!  Like a speeding bullet, Cole rode a sheep farther and longer than any other little cowboys and cowgirls at the rodeo.

Cole is ENERGETIC!  Unable to stand still in the outfield of a TeeBall game, Cole has been spotted picking flowers and throwing dirt.

Cole is CHARMING!  Cole never misses an opportunity to greet a pretty lady.  He has been witnessed practicing on the mannequins at department stores with, “Hello Ladies!”.

Note (posted 10/23/12):

You can see Cole’s journey at Carepages.com. The name of his care page is colecoopercarepage.

What advice do you have for future NICU parents?

You are your baby’s best advocate… don’t be afraid to ask questions.  Although you may not be able to hold your baby for a while, you can read, hum, and sing to your baby.  Be as involved as the hospital staff will allow you to be. You can tell them you want to participate in little things like bathing, diapers, and feedings.

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Amazing Ava

Ava H

Ava H ~ Super Hero Alias: Amazing Ava

Current age: 2.5 years old
Weight at birth: 1 lb 2 oz
Weeks gestation: 24 weeks
Time in the NICU: 176 days in NICU, 278 days in PICU, Total of 454 days in hospital since birth

Diagnosis, surgeries, complications?

Trached & ventilated for 2-1/2 years, pulmonary hypertension, asthma, GJ, G-tube, micro-preemie, ROP, PDA, BPD, GERD, weak immune system, slow gastric emptying, severe developmental delays & more

Why Should Your Child Be Recognized as Preemie of the Year?

Look up in the air, it’s a bird… it’s a plane… It’s Super Ava! My daughter Ava is a child who will make a difference in this world. Her inviting smile and story has already helped people have faith and hope. We were told from the beginning that she would never be viable (from 6 weeks on) but Ava’s heart stayed strong & healthy. Although she has gone through challenges most people don’t see in a lifetime, Ava has chosen to conquer life and take it on like “Super Girl”. She has fought numerous enemies like Lung Disease & infections with remarkable patience & ease despite being in the hospital most of her life. Being born as a micro-preemie hasn’t conquered Ava, but rather made her into a strong & loving Super Hero that has hurtled life with a single bound.

Using Three Or More Characteristics of a Super Hero, Please Describe Your Child.

Courageous – Ava has been courageous from the start. From shaking her fist at the NICU nurses the night they told us she was going to die, to bravely getting monthly immunoglobin infusions & blood draws.

Super strength – A few days after Ava came home to us the first time, she needed chest compressions to revive her. On the way to the hospital in the ambulance after being revived, she watched Elmo on my lap as if nothing happened. This happened twice before the hospital discovered she had rotavirus.

Extra endurance – Ava went 6 weeks without amniotic fluid in utero. Her heart kept beating strong & despite the docs saying that she would never be viable, Ava came out fighting for the long haul. She has endured numerous induced comas while in the NICU & PICU which kept Ava from sitting up until she was over 1 1/2 years old. She started walking & being ventilator-free this July & no longer needs a trach to breathe.

Kind to Strangers – Ava always has a smile to share and can make someone’s day incredibly bright. She waves to strangers and reaches out her hand to invite them into her world of love.

To see more instances of Ava’s strength, you can view her blog at http://annhackett.blogspot.com

Note: This photo of Ava is the day that Ava’s trach came out & she breathed without any assistance.

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The Mighty Pound

Aiden W

Aiden W

Aiden W ~ Super Hero Alias: The Mighty Pound

Age: 4 months
Weight at birth: 1 lb 10 oz
Weeks gestation: 24 weeks, 5 days
NICU stay: 109 days

Diagnosis, surgeries, complications?

RDS, Precipitous Delivery, Hypernatremia, Hyperchloremia, Hyperglycemia, Hyerlipidemia, Hyponatremia, Over 15 Blood Transfusions, Anemia of Prematurity, Respiratory Acidosis, Jaundice, Thrombocytosis, PFO, Chronic Lung Disease, Bilateral Grade 2 IVH, Post Hemorrhagic Hydrocephalus, Acute Renal Failure, Oliguria, ROP. Was on ventilator for over a month and is home now (still on oxygen/apnea monitor)

Why Should Your Child Be Recognized as Preemie of the Year?
Of course every preemie parent thinks of their child as “Preemie of the Year” but I think Aiden deserves to be recognized as “Preemie of the Year” because he has overcome what so many people didn’t believe was possible. He was blessed from the moment he was born. They always say a baby born still in the amniotic sac is a blessed baby. That was the case with Aiden and as soon as they broke the sac he started breathing and crying all on his own! It was the best sound in the world since we all know that it was highly possible for him to be born not breathing at all.

Aiden had plenty of good days in the NICU but he had multiple bad days as well. It hurts so bad being a parent and seeing your precious baby lay helpless in an incubator struggling just to breathe. Every time they would diagnose him with a problem he found the strength to overcome it. He didn’t let anything keep him down for long and he kept on proving everyone wrong. He’s our little miracle and he is proof for everyone out there that miracles can happen and that if you are there by your baby’s side in the NICU then they will find the strength to pull through.

Aiden came home the day after his due date (September 5th, 2011) and is up to 9lbs 8oz now. He is still on oxygen and apnea monitor but we are so happy to have him home.

Using Three Or More Characteristics of a Super Hero, Please Describe Your Child.

Aiden’s first super-hero power would have to be Super-Strength like The Hulk. Without this power there is no way he would have been able to defeat the stay in the NICU. Using his Super-Strength he has beat down his premature lungs, his brain bleed, and his hydrocephalus and is still going strong and ready for whatever comes next!

Aiden’s second super-hero power is Accelerated Healing like Wolverine! He showed us this power in his first few weeks of life. When he was touched or had leads on him they left abrasions and his skin would bleed and bruise because his skin was so thin. Aiden didn’t let this bring him down and he would heal himself very quickly. Now he has a few tiny scars from it but you can barely tell that he ever had to go through such pain.

Last but not least, Aiden’s third super-hero power is Bravery like every super-hero. Aiden has showed us tremendous amount of bravery since the day he was born. He was ready to come into this world and when he got here he showed us the true meaning of how to be brave. He fought hard and didn’t cry at all. He took all the poking like a man which shows me that he is brave enough to do anything is this world and that is why I know he is going to grow up and do big things.

What advice do you have for future NICU parents?

Don’t lose Hope.

There is a book titled “PREEMIES” (large green letters on front) BUY IT!!! It’s basically the “What to expect” book for the NICU and anything that could possibly go wrong in there and in PLAIN language. It helped me understand a lot more about what my baby boy was going through and what the pros and cons were of every procedure.

Don’t be afraid to talk to people about how your feeling and what you are going through. Have a support “person” or “group” We stayed at the Ronald McDonald House and it helped us a lot because we were able to talk to other parents that were going through the same thing.

Last but not least, Pray everyday.

Describe how Hand to Hold’s services are meaningful to you and future families. What kind of support would have helped you most during your journey?

Hand to Hold’s services are amazing. It gives parents hope and a way to see that other Parents are going through the same thing. It gives Parents peace of mind knowing that other children have been strong and survived being a preemie.

The best kind of support is knowing that you aren’t alone.

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One Pound Wonders

Camdyn & Cade H – Super Hero Alias ~ One Pound Wonders

Camdyn and Cade H

Camdyn and Cade H

Age: 18 months
Weight at birth: 1 lb, 2 oz and 1 lb, 8 oz
Weeks gestation: 24 weeks
NICU stay: 133 days

Diagnosis, surgeries, complications?

Camdyn – PDA ligation, grade II head bleed, collapsed lungs, chronic lung disease, intubated 5 weeks

Cade – PDA ligation, grade II head bleed, pneumothorax (air pocket in lungs), paralyzed vocal cord, g-tube surgery, plagiocephaly, chronic lung disease, vented 5 weeks

Why Should Your Children Be Recognized as Preemie of the Year?
The One Pound Wonders came into this world 16 weeks early weighing a mere 1 lb 2 oz (Camdyn) and 1 lb 8 oz (Cade). From the first day of life, they had to valiantly fight off all the evil NICU villains, those malicious micro-preemie harmers – IVH, PDA, ROP, CLD, and the gang. After 133 days of continuous fighting, they left the NICU battlefield. The One Pound Wonders encountered still more battles. They spent over a year fighting off the evil Feeding Fiend who caused them both to deal with major feeding issues. Cade used his magic g-tube portal to gain superhero strength to eventually conquer this evil enemy. Camdyn, although tiny, showed her fierce superhero powers to overcome this enemy on her own. The One Pound Wonders continue to gain strength and power in their superhero training camps, aka occupational, physical, and speech therapy weekly. They have left the world in awe of their amazing powers – the power to eat, breathe, walk, talk, and most importantly, live after being given only a 30-40% chance of surviving! The One Pound Wonders have proven to the world that miracles exist.

To follow their progress, visit our blog at www.camdyncade.blogspot.com.

To watch a slideshow of their incredible journeys, visit http://www.youtube.com/watch?v=il0NdAfvzQI.

Although it would be a huge honor to be recognized as Preemies of the Year, we are entering the contest in hopes of being recognized with the Thundering Thurston award (entry with the most votes). We need your votes to help us achieve this. The amazing Thundering Thurston was in alliance with our One Pound Wonders in the same NICU. I am honored to be friends with Thurston’s incredible mother. We walked through our NICU journeys together supporting one another along the way. We would be so honored to win the Thundering Thurston award in memory of this amazing baby boy who touched the lives of so many.

Using Three Or More Characteristics of a Super Hero, Please Describe Your Children.

The One Pound Wonders have demonstrated their superhuman powers with their strength – they had to endure so much pain throughout their NICU journey, their endurance – they work so much harder to accomplish milestones that come easily to others, and their perseverance – they never gave up even though the odds were stacked strongly against them. They will continue to leave the world in awe and wonder at all they will accomplish!

What advice do you have for future NICU parents?

Connect with other parents who understand what you are going through.  Also, be your child’s advocate.  You know your child best.

Describe how Hand to Hold’s services are meaningful to you and future families. What kind of support would have helped you most during your journey?

Hand to Hold’s quarterly discussions have given me great information to navigate insurance, therapies, specialists, etc. after my twins came home from the NICU.

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Andres the Tiny Warrior

Andres M. ~ Super Hero Alias: Andres the Tiny Warrior

Andres MAge: 2  years old
Weight at birth: 1 lb, 10 oz
Weeks gestation: 24.5 weeks
Time in the NICU: 86 days

Diagnosis, surgeries, complications?

Placental abruption, ROP Stage 1, Bilateral Grade 1 IVH, BPD, Chronic lung disease, PDA, 2 septial heart defects, Pulmonary Valve Stenosis, Severe GERD, multiple blood transfusions, dysphagia, delayed gastric emptying, low muscle tone, G-tube and fundoplication surgery, seizures, failure to thrive.

Why Should Your Child Be Recognized as Preemie of the Year?
The meaning of Andres’ name is warrior and he is our ‘Tiny Warrior.” I believe that Andres should be named “Preemie of the Year” because of his strong will to thrive despite all the odds that have been stacked against him. As you can see from the list of diagnoses and complications, Andres has and still is  battling against the evils of extreme prematurity. In the NICU he was taken on and off the ventilator 6 times; given 7 blood transfusions; and 2 NEC scares to name a few. He struggles daily with gaining weight and his ability to eat/swallow properly. Andres has weeks when he is allowed to eat orally and others when he is not and he handles this well for a two year old.  His resilience amazes everyone he meets. Andres has been readmitted over a dozen times since his initial NICU discharge. He has fought off colds, RSV, and every virus known to man. Andres has encountered almost every complication that a micro preemie could face and yet despite all that; he has hit almost every milestone for a child his age. He began walking 6 weeks before his 2nd birthday, months before anticipated. Andres has far surpassed everyone’s expectations. Looking at him today and thinking back to his meager beginnings, I am in awe at his relentless drive that keeps him going. All preemies are super heroes, but this is the reason why I believe that Andres should be Preemie of the Year.

Using Three Or More Characteristics of a Super Hero, Please Describe Your Children.

Brave- Andres had endured needle sticks, pokes, xrays, tests and doctors visit’s to numerous to count. He’s been a good patient all the while too!

Caring- Andres does not like to see others cry or upset. When he was little and other babies would cry he would cry too. Now that he is mobile he will crawl into your lap and pat your back or lay his head on your lap if your upset. Andres would lay down next to our boxer and fall asleep beside him when his “doggie” didn’t feel good.

Strong- Andres is very strong willed. There is nothing that will stand in that little boy’s way of something that he wants!

What advice do you have for future NICU parents?

Be your child’s advocate. Don’t be afraid to speak up, just because they are taking care of baby doesn’t change the fact that your their mother. Trust your gut instinct. and journal, journal, journal….the NICU is a rollercoaster and a journal will help you remember your journey.

Describe how Hand to Hold’s services are meaningful to you and future families. What kind of support would have helped you most during your journey?

The services that Hand to Hold offers are amazing to a family experiencing the stress of a NICU stay and a sick newborn. Utilize the resources that are available to you, it helps more than you know. I wish that I would have known about more of them when my son was there.
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The Infamous Dominic

Dominic V. ~ Super Hero Alias: The Infamous Dominic

Dominic VAge: 10 months
Weight at birth: 1 lb, 6 oz
Weeks gestation: 24 weeks
Time in the NICU: 122 days

Diagnosis, surgeries, complications?

Respiratory distress syndrome, (ROP) Retinopathy of Prematurity

Why Should Your Child Be Recognized as Preemie of the Year?

Having an easy pregnancy & excited about being pregnant with my first child, my water suddenly broke one afternoon. Not knowing what was happening, we went to the hospital & we were told that I had a ruptured membrane & would have to be bed ridden for the remainder of my pregnancy. Hours later, my doctor came in with the news that I needed to deliver our son at 24 weeks via emergency c-section. Being faced with our son having a 50/50 survival rate really tested our faith. Early Dec 12, our little miracle Dominic was born weighing 1 lb 6 oz 12 1/2 in long. At 9 days old, he was already named “The Infamous Dominic” by his nurses & physicians. Despite having some respiratory issues, there was nothing wrong with him. Everything was how it should have been, he just came early & needed help growing. Every day was a new challenge, and at the end of the day, another hurdle had been passed. We had more good days than bad days & the light at the end of the tunnel had finally reached us & he came home on his 4 month birthday.
Today at 10 months old, he just amazes us. He has the most beautiful eyes and the biggest smile. His personality just shines bright. For all he has overcome at such an early age, he is the happiest baby. He loves his family, he loves his blankie, he loves being outside.

He should be recognized as “Preemie of the Year” because he is a true example of a miracle…a true blessing who brought so many people together. He overcame the odds he was faced with. He is strong willed, he is loving, he is our angel & we are so proud of him.

Using Three Or More Characteristics of a Super Hero, Please Describe Your Children.

STRONG-From the beginning, he always had a strong heartbeat. With his middle name still undecided, we decided during the c-section, that his middle name would be Randy, after his maternal grandfather, who overcame prostate cancer & was a survivor himself. When we got to touch him, he always had a strong grip, so strong that he even extubated himself a few times.

WILLPOWER-He had the will to live. He was the smallest baby in the NICU and had many, many people praying for him. He was sent to us early & we got our willpower from him on the hard days.

FEARLESS-He went through blood transfusions, gavage feedings, & numerous ventilators before being able to “do it on his own” Through it all, he was fearless. He gave us hope, he gave us a new meaning to life itself…he was fearless.

What advice do you have for future NICU parents?

Ask questions! Seek advice from other parents who have been down that road…talking to someone who’s been there really helps, and lastly, never give up hope.  Through Faith, Hope & Love…all things are possible…miracles do happen, our children are examples of that.

Describe how Hand to Hold’s services are meaningful to you and future families. What kind of support would have helped you most during your journey?

Knowing that we’re not alone in this journey really helps.  We were blessed with a wonderful NICU staff & social worker who always answered our questions & who became like family to us, but we wished there had been a support group with other NICU parents that the hospital or community could have offered.
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Site last updated May 21, 2013 @ 9:13 pm