Kastyn & Kenady M ~ Super Hero Alias: Tiny-N-Tuff
Age: 8 months old
Weight at birth: Kastyn 2lbs, Kenady 1lb 15oz
Weeks gestation: 26 weeks
Time in the NICU: Kastyn 120 days, Kenady 141 days
Diagnosis, surgeries, complications?
Kastyn: Bronchopulmonary Dysplasia, PDA, ROP, Laryngomalacia, Osteopenia of Prematurity, Hydronephrosis, Gastroesophageal Reflux. Surgeries: PDA Ligation, Supraglottoplasty
Kenady: Bronchopulmonary Dysplasia, Gastroesophagael Reflux, Subglottic Stenosis, ROP, IVH, PDA. Surgeries: Glottis Granuloma Resection, Tracheostomy, Gastrostomy Tube, Nissen Fundoplication
Why Should Your Children Be Recognized as Preemies of the Year?
Kenady and Kastyn should be recognized as Preemie of the Year because they are the example of strength. I was put on hospital bed rest at 20 weeks and my doctor thought that within a couple of days I would lose both of them. They held on for 6 weeks. When they were born, they were so tiny yet so strong. Kastyn was the sickest baby and for days we didn’t know if he would live. His lungs were so bad that they did not know if he would be able to come off of the ventilator. He fooled everyone and 120 days later he came home with no oxygen and very few medications. He now weighs 15 lbs and is growing like a weed. Kenady also played a few tricks on us. At six days old she was off the ventilator and breathing on her own but was so small she wore herself out. At a week old and only 1lb 12oz she flipped over and extubated herself. We knew she was a fighter. After 115 days in the NICU it was determined that she would need a tracheostomy. She received her trach on July 8th and on July 17th she came home. She is still tiny at 11lbs but she is a little spitfire. After all that she has been through she has a smile that will light up a room. Kastyn and Kenady are my heroes.
Note (posted Oct 31, 2012):
Thank you to everyone for voting…We just recently found out that our fierce little girl has more obstacles to overcome. We thought she would outgrow the need for her trach but things went the opposite direction and her airway is completely closed. The trach is her lifeline. The doctors hope sometime after her 1st birthday they can reconstruct her airway. She is so brave and still smiling everyday.
Using Three Or More Characteristics of a Super Hero, Please Describe Your Children.
Kastyn is strong, thoughtful, and energetic. He has a very sensitive side to him.
Kenady is my brave, fierce fighter. She always has a smile and can melt your heart.