Miracle Girl!

  • AbigailAge: 6
  • Weight at Birth: 2 pounds 14 ounces
  • Weeks Gestation: 29 weeks
  • Time spent in the NICU: 38 days

Super Hero Characteristics: Abby is our strong, mighty over comer. She’s the underdog you root for that will not back down!

My Preemie Power Story:

Abigail means the joy of the father. She’s the gift my husband wanted while the rest of the family wanted a boy, we got the girl he wanted. I was never put as high risk or given a notice of anything wrong with my pregnancy. One day I began heavily bleeding and didn’t stop. Only after one week of bed rest, it was determined that after an infection had spiked there was no choice but to do an emergency c-section. We were told she would be intubated, possibly damaged from the infection but the extent would be unknown until she came out. Well, she came at a whopping 2 pounds 14 oz and was breathing on her own! When the NICU team said she would be in the NICU until her actual due date (10 weeks), Abby would instead leap over every hurdle and only be there for 5.5 weeks. Even at home she continued to leap over hurdles, amazed her pediatrician with how much she grew and was so joyful through it all. Looking at her now, no one would believe she was a preemie. She’s our mighty overcomer who wouldn’t back down, kept fighting to live and she did it with a smile on her face!

 

Fearless Arianna

AriannaAge: 16 months
Weight at Birth: 2lbs 12oz
Weeks Gestation: 29
Time spent in the NICU: 59 days

My Preemie Power Story:
Preemie Power Story From the very beginning of my pregnancy I was considered a high risk patient. I had chronic hypertension and gestational diabetes and was recommended to see a high risk doctor as well as my regular doctor. About a week and a half before I had Arianna my blood pressure was staying high and so my doctor decided to do some blood work. The next day they called and told me my blood work wasn’t good and that I needed to go to L&D. When I got there I was admitted and a bunch of blood work was done and I was told that some of my numbers were high. I was told I was going to have to start going to the doctor more frequently for testing and was given a steroid shot and sent home. Four days later I had a appointment with my high risk doctor for an ultrasound. They discovered my placenta had ruptured and I was admitted back into the hospital. For 4 days I was monitored and had blood work done. I had developed Pre-eclampsia while in the hospital. The morning my daughter was born they did another ultrasound checking on her and they discovered my placenta had ruptured more. My high risk doctor and the doctor that delivered my daughter told me that they needed to get her out. I was taken over to L&D where they did a emergency c-section. My daughter Arianna was born on May 19, 2013 at 2lbs 12oz and was 15″. I got to see her a few seconds before they took her to the NICU. She was so beautiful and so tiny. I didn’t get to see her until 28 hours later. She was a fighter from the beginning. They discovered she had Patent Ductus Arteriosus and was given medicine and it cleared up after being given the medicine. The first time she was given a bottle she had no issues and finished it. She spent 59 days in the NICU before she finally got to come home. It was so exciting and scary at the same time. Now she is 16 months old and weighs 25lbs and is 31″. She is a fighter and I am so proud of her. Everything that was thrown at her she pushed through it and kept going. She is fearless!

Super Hero Characteristics:
Strong, Fearless and Awesome

Miracle Man

JacobAge: 5 months
Weight at Birth: 3 lbs 1 oz
Weeks Gestation: 29
Time spent in the NICU: 58 days

My Preemie Power Story:

Jacob is our little Miracle Man! He was the answer to so many prayers in so many ways, and being his parents has been one of our greatest blessings. Jacob’s story of how he came to our family is a miracle, and how he made his grand entrance into the world is even more so. After years of infertility and pregnancy losses, we knew we wanted our older son to be a big brother, and we knew once again adoption was the right answer for us.

We matched with his beautiful Birthmom in mid-April. She was due in July, and we were all enjoying getting to know each other, and planning for Jacob’s arrival. We planned for his delivery, and made arrangements for our 7 hour trip to meet them. Well Jacob had other plans! We received a phone call at 5:30 in the morning on April 28 that his birthmom was in labor. We started to scramble to pack for an immediate trip. By 8:43am Jake had made his way into this world, and we were on the highway heading to meet our miracle. We were later told a placental abruption was the cause of his early delivery. Thinking about that day still floods me with emotion.

Meeting his birthmom in person and sharing our dreams and worries for Jacob, was a conversation I will never forget. Having them open the hearts and selves to us was an amazing experience. By that evening we were finally able to meet our little miracle. He looked tiny and fragile, but indescribably beautiful. I was and still am in awe of how hard he fought just to be here.

Jake was strong and described by the nurses as feisty from day one. He struggled with breathing issues, and spent a good deal of time on a CPAP and nasal cannula. He also had a PDA that resolved with medication. Jacob was slow to give up breathing assistance, and that’s ok, because even miracles take time. We spent 58 days with Jacob in his home state NICU. I will admit it was difficult.

Being far away from home, and trying to plan trips for my older son and husband back and forth to home. BUT he was worth every second! The hardest part was just watching him struggle. However, I found so much joy in each milestone he reached. It was a blessing watching our little miracle in the making! Each day he seemed to get stronger and reach a new milestone. Even the tiniest of milestones, just like the tiniest of neonates are a blessing. At 5 months old Jacob is thriving! He is over 15 lbs., and meeting milestones ahead of his adjusted age. He is the happiest little baby and just a complete joy to have. Watching his bond with his brother is incredible. Miracles happen every day, and I am beyond blessed to get to hold mine in my arms!

Super Hero Characteristics:
strong, resilient, inspiring

Gabby the Great

GabriellaAge: 2 years
Weight at Birth: 1lb 4 ozs
Weeks Gestation: 29 weeks
Time spent in the NICU: 118 days

My Preemie Power Story:

My beautiful daughter was given a 10% chance of survival. She overcame so much during her 118 day NICU stay. She was a fighter all the way. She had all the usual micro preemie problems, including NEC. She had an umbilical hernia, sacral dimple and severe edema. She was on a vent for 51 days, and came home on oxygen.

The NICU days were just unbearable, not knowing if she would live or die. I learned to lean on God more than I ever had before, lots of bedside prayers. The first time I held her, she was well over 2lbs and 1 month old. So small, but yet so mighty. I had never in my life seen a preemie until her. What amazing things the doctors can do these days to keep these tiny super heroes alive!

When my daughter came home she was 5lbs 14ozs. She had a heck of a time eating, and as a result she was a tiny 11lbs at one year old. Despite her small size at 18 months, she learned to crawl, and at her second birthday she walked. She does not eat any food as of yet. We are in Feeding, Speech, Occupation and Physical Therapies. She has AFOs for her feet because her gait is very off. She doesn’t talk yet, but I am hopeful she will soon learn. She has her fair share of troubles still. She has a serious Developmental Delay, she is G tube fed, she amazes me.

We see so many specialists who have no answers as to why she is not progressing very well. I am proud of her everyday, for never quitting. I can’t communicate with her yet, but I know she understands how much I love her. I was not always the best mother, before I got her. I feel like I have been redeemed in my role as a mother caring for her special needs day in and day out. The traumatic birth, and long NICU stay, then all the issues that follow a micro preemie through life, don’t seem so bad, when I see her smile. Other days, when its seems like all hope is fading, I still can just think of how hard she fought just to live, all of the things she had to face as a 1lb infant in this big scary loud cold world when she should have been in my womb.  Well, she is a super hero. A miracle is what I like to refer to her as, OUR FAMILY MIRACLE! I can’t imagine one day of my life without her, thank you, God, for Gabby the Great!

Super Hero Characteristics:

Strength, Fierceness, Persistence

Miracle Man

KyleAge: 1 year
Weight at Birth: 1 lb .04 ounce
Weeks Gestation: 29
Time spent in the NICU: 149 days

My Preemie Power Story:

After hearing for nine weeks that our son would not make it out of the womb, he amazed us all with his strength.  Every week we went to listen to his heartbeat and it was always steady and strong.  He was born tiny, weighing not even one full ounce over 1 pound.  Through all his setbacks in the NICU (Rickets, broken femur, MRSA, etc.) he managed to remain strong and fight for life.   There were many days that we were not sure just how much more he could take but he always amazed us with his willingness to push on.  After 149 days in the hospital, we were able to come home on oxygen and with a feeding tube.  Even though it hasn’t been easy, it has been an amazing learning experience.  He is growing, getting stronger with the help of some amazing therapists, and still defying odds one year later.  Kyle’s amazing personality and love of life have helped him make it this far.  Every time we go back and visit his NICU doctors and nurses, they are astounded and impressed by all he has accomplished.  Kyle taught us to never give up and always trust God to provide for our needs.  We do not know what the future holds for Kyle but we do know that we have all we need to face it with courage, grace and an unwavering attitude.

Super Hero Characteristics:

Kyle is driven. He had to fight hard to make it into this world and he will continue to fight.
Kyle is charming. He can make anyone smile and is full of laughter and love.
Kyle is strong and continues to grow stronger each and every day.

Sir Dylan Eli the Dragon-Slayer

DylanAge: 20 months
Weight at Birth: 3lbs, 3oz
Weeks Gestation: 29
Time spent in the NICU: 101 days

My Preemie Power Story:

Dylan Eli was born 11 weeks premature on Valentine’s Day 2012, weighing 3lbs, 3oz, 15.75″ long. Today he weighs 22lbs and is just over 31 &1/2 inches long. The journey to today has been nothing short of miraculous!

The list of ailments Dylan has overcome is long, but most very common in premature infants. Very weak and unable to breathe without assistance, Dylan battled a dangerous bacterial infection for 101 days in the NICU. With the infection throughout his body, no one was sure he was going to live… except his moms! [Read more…]

Surprise Miracle Aimee

AimeeAge: 13 months
Weight at Birth: 2lbs 2 oz, 960g
Weeks Gestation: 29+5
Time spent in the NICU: 62 days total between 2 hospitals

My Preemie Power Story:

We only found out that I was pregnant at 22 weeks, and didn’t know I was that far along until I went for an ultrasound at 24 weeks. We were very surprised, but baby seemed to be doing good and weighed 1 pound 6 ounces on the ultrasound. The next 4 weeks, I finished up college and was starting to prepare for baby’s arrival. When I was 28 weeks pregnant, we were in a car accident where I was brought to the hospital to check on the baby. I was told I had to stay for 4 hours to make sure everything was fine. The baby was doing great, but they took blood work and discovered I had pre-eclampsia (and possible hellp syndrome). My blood pressure was very high. They informed me that they were going to be sending me to a hospital with a NICU and gave me my first dose of steroids. I was told they were going to try and push it 48 hours to let the steroids work, but they weren’t sure that would be possible.

A very long and stressful 8 days later, they were doing an ultrasound and found out I also had placental abruption. My daughter was born by emergency c-section 2 days later weighing only 2 pounds 2 ounces. She was IUGR. We got to see her for a minute before they took her away to the NICU. I wasn’t allowed out of bed to see her until the next day due to the magnesium they were giving me through my IV. When she was 24 hours old, I finally got to see her. She was gorgeous, but very tiny. I put my hand in the isolette, and she grabbed it almost immediately. She was doing great, but was on CPAP. The nurse said she liked the little “puff” of air. She was on CPAP for 3 weeks, mostly on room air. She spent 26 days in the NICU and then got transferred to the special care nursery at my local hospital. The level 2 nursery was full and they needed the room in level 3.

She spent another 36 days there where she learned to eat and grow. She came home 10 days before my due date weighing 5 pounds 3 ounces.

Aimee has an atrial septal defect (ASD). She has had many cardiology appointments, and we finally do not have to go back until she is 3 unless she starts to have problems.

She had low sodium for the first 6-7 months of her life. She had 3x daily sodium supplements and bi-weekly blood sodium checks.

At 13 months old, she is still small for her age but she is doing great. She’s 18 pounds and 28 inches long.

This is Aimee’s blog. http://aimeeelizabethbourre.blogspot.ca/

Super Hero Characteristics:

Determined – She is determined to not let her prematurity hold her back. She tries so hard to keep up with full term babies her age.

Strength – Aimee has proven to be very strong. She has been through a lot and is still a very happy little girl.

Intelligent – She is a very smart little girl. She learns fast and loves to learn new words.

Super B

BronsonAge: 5 years
Weight at Birth: 2 lbs, 3.4 ounces
Weeks Gestation: 29.5
Time spent in the NICU: 60 days

My Preemie Power Story:

Bronson is the light in our world. He was born 6.5 weeks after I learned that I would be delivering his identical twin brother stillborn. Doctors commented that he was a ’10 pound baby trapped in a 2 pound body.’ He is a fighter and makes this world a happier place. Bronson has the HUGEST imagination and is happiest when in one of his many costumes playing either Army man, astronaut, police officer, or mad scientist.

Super B has been part of our family’s March for Babies team since 2009 and has collectively raised over $10,000 to benefit families and babies that are born too soon. Last year was his first year that he personally went around and collected donations and even created his own video requesting family and friends to donate to the babies in the NICU.

Bronson spent the first 60 days of his life in the Sacred Heart Hospital in Eugene, Oregon. Once able to go home he had two surgeries to correct a few minor setbacks from his prematurity. He is a happy and healthy five year old now.

Bronson’s biggest super power is his ability to make other people laugh. There is never a dull moment in our household and I often find myself answering the phone to one of our family member’s requesting one of his stories. He has the quickest sense of humor and is wise beyond his years.

Our family feels extremely blessed to have Bronson in our lives and we choose to use his experience to educate others and to raise awareness of the importance of good prenatal care and research for the prevention of prematurity. We credit surfactant for the reason that Bronson is a success story. This steroid injection was given to me upon arrival to the hospital and provided Bronson’s lungs the extra boost to be able to breathe on his own. He was never on anything more than the CPAP machine and that was only for the first 8 hours.

We are so thankful for organizations such as Hand To Hold and March of Dimes that raise awareness and create communities for those going through the NICU experience.

Super Hero Characteristics:

Dashingly Handsome, Quick Witted, and Heart of Gold

Little Warrior

Kane ~ Super Hero Alias: Little Warrior

KaneAge: 3 months
Weight at birth: 2 lb 12 ozs
Weeks gestation: 29 weeks
Time in the NICU: 61 days

Why Should Your Child Be Recognized as Preemie of the Year?

My baby was conceived after I had an endometrial ablation and was told not to expect to carry. There is only a 0.5 percent chance of pregnancy after an ablation. I was told I could miscarry any day that there would not be sufficient endometrial tissue for a baby to implant. My baby was Heaven sent and kept growing inside of me despite the odds. I also have epilepsy and had several seizures during my pregnancy that my baby survived. When I was 29 weeks I started having contractions and went into premature labor and then my water broke and then my placenta abrupted and it was an emergency c-section. Our beautiful son who we had prayed for so long for was whisked away to the NICU where he would grow for the next 61 days. The nurses always said what a miracle he was and how they just could not believe how great he did in the NICU. We were so happy the day he was strong enough to come home and meet his beautiful 7 year old sister for the first time ! His story has touched many lives, We cannot wait to see what this young man will grow up to do with his life !

Using Three Or More Characteristics of a Super Hero, Please Describe Your Child

Our Son is named Kane which is Irish for little Warrior ! He is a STRONG, BRAVE, WARRIOR !

The Amazing Leland

Leland ~ Super Hero Alias: The Amazing Leland

LelandAge: 17 months
Weight at birth: 1 lb 13 ozs
Weeks gestation: 29 weeks
Time in the NICU: 79 days

Why Should Your Child Be Recognized as Preemie of the Year?

He’s my hero! The day he entered this world I knew he was a fighter who could beat the odds. He had already been thru a good bit while still in the womb so outside I knew he would do just as well. While in the NICU, there were more downs than ups but he made it thru. Everyday we scrubbed in meant we were closer to coming home. He may be small but has the biggest personality and toughest attitude. No matter what he will always be my hero!

[Read more…]