Sterling W ~ Super Hero Alias: The Pee-er
Age: 10 weeks
Weight at birth: 3 lbs 11 oz
Weeks gestation: 34 weeks
Time in the NICU: 56 days
Diagnosis, surgeries, complications?
Truncus and aorta repair. Focal seizures left arm. Moderate stroke. 1-1/2 collapsed lungs. Left vocal chord paralyzed. Jaundice. Arrhythemias. Apnea. Bradycardia. That is all I can think of now. But I’m sure there is more.
Why Should Your Child Be Recognized as Preemie of the Year?
He has been through so much. He was a preemie, but because of placental failure he was really small for his age. So he had to grow before he could have surgery to repair the truncus and aorta. He had apnea and bradycardia from being premature, but he was also on prostaglandin that just made the apnea and Brady spells worse. The TPN started giving him problems with his liver. He was on Lasix to help with the fluid on his lungs, that threw off his electrolytes giving him arrhythmias. His hematocrit kept dropping so he was having blood transfusions 2-3 times a week. Once he was 6 weeks old (actual) he was finally big enough to have open heart surgery, but those were not without complications. He threw a clot from the bypass giving him a moderate stroke and seizures. All the swelling in his chest collapsed his left lung halfway and his right lung entirely. His left vocal chord was also paralyzed from the surgery. But our little guy is a fighter. He came home at 9 weeks old (actual) on oxygen and a NG tube. But he is finally home with us and we are thrilled. He is now 10 weeks old and weighs 7 lbs 8 oz. we are so proud of our little fighter.
Using Three Or More Characteristics of a Super Hero, Please Describe Your Child.
strong, charming, calm
Our little guy is well known by all at UCSF. He quickly got a reputation not only for being cute, but for the incredible superpower of being able to pee on everything in his isolette while swaddled in a daiper. He quickly became known as “the pee-er”. He has peed on many of the nurses and his dad. He peed this morning and created a puddle almost twice the size of his body, while in a diaper and swaddled. But the pee-er is not into being dirty. The only reason he screams is if his diaper is dirty.
The pee-er is also known for being incredibly cute–melting hearts with his expressive face.
The pee-er is often accompanied by his trusty sidekick Bear. A beanie baby that was just a little smaller than him at birth. Bear has been by his side through his journey in the NICU and has followed him home to continue to fight together as long as there is a need to fight.
What advice do you have for future NICU parents?
Occasionally leave the hospital. Sleep in your own bed. Eat a home cooked meal. Especially if the stay is long. You can’t sleep in chairs and eat at the hospital forever.
Bring in hats for the baby. It makes them look like they belong to you and not the hospital. Decorate their isolette. Make a sign with their name. Bring in 1-2 SMALL stuffed animals, think beanie baby size.