Sophia K. ~ Super Hero Alias: Ninja Sophia
Age: 2 years
Weight at birth: 1lb 9oz
Weeks gestation: 24 weeks
Time in the NICU: 103 days
Diagnosis, surgeries, complications?
Chronic Lung Disease, PDA, Oxygen dependent, malnutrition, hernia, Retinopathy of prematurity (eye sugery), vision loss, oral hyposensitivity & tactile hypersensitivity
Why Should Your Child Be Recognized as Preemie of the Year?
Sophia has always been a fighter, even came out kicking and trying to cry. She has 3 therapies each week & has come so far for her little age of 2 (21 months adjusted). She continue to give others hope by visiting the Ronald McDonald House & Room where other preemie parents stay while their children are in the NICU. Not to mention being inspiration for preemie parents on Facebook. When you tell people you have a 24 week old and see how far she has come it really does give hope to other who are just starting their rollercoaster ride.
Using Three Or More Characteristics of a Super Hero, Please Describe Your Child
My Sophia is known as the little Ninja because she is such a strong little fighter who conquers any developmental/medical issues she has.
What advice do you have for future NICU parents?
You are your child’s best advocate, it’s important to be there regularly in the NICU not only for the bonding/kangaroo care but to make sure things are going right. And if you need help (emotional/informational) don’t be afraid to ask anyone because this is a very hard time & they want to help so let them.