Jazzin Josie

Josie H. ~ Super Hero Alias: Jazzin Josie

Josie HAge: 2 years, 8 months
Weight at Birth: 1 lb 15 oz
Weeks Gestation: 27 weeks
Time in the NICU: 100 days

Diagnosis, complications, surgeries?

Josie has chronic lung disease, and an immune deficiency. She had surgery in June of 2009 for port placement for her to receive her I.V.I.G and she just had surgery in October of 2011 to remove the port due to complications.

Why should your child be recognized as “Preemie of the Year”?

Josie is our miracle baby! She came into this world fighting and she wasn’t bcking down. She was born at 27 weeks weighing only 1 pound and 15 ounces and was 13 inches long. We were on the NICU rollercoaster for exactly 100 days. In those 100 days we were told many times that we would need to prepare to lose our daughter, but they didn’t know what she was capable of. Josie was breathing on her own when she was born and continued to do so with the assistance of a c-pap machine untill she developed two major lung infections, 4 weeks later that caused her to be placed on the vent for a month and and left the doctors and nurses baffled as to why after a month of the vent and numerous strong antibiotics Josie just could not get rid of these infections. These infections we were told would cost our precious baby girl her life if they could not find out why she was not improving fast! That is when her immune deficiency was discoverd. After several blood transfusions, I.V.I.G, antiobiotics, and patience, Josie finally was off the vent. Now for another bump. Because of the high use of the vent, and the numerous doses of strong antibiotics we were faced with the possibility that Josie may never hear or see. She indeed failed her hearing test and showed stage 2 signs of retinopathy. We had prepared ourselves for the worst with this. How were we going to be able to communicate with our daughter if she could not see or hear us? A couple months later, lo and behold after many many prayers, Josie passed her hearing test and her eye sight had corrected itself. We were elated! Today, Josie is almost 3 years old and preparing for pre-school. She continues to recieve her I.V.I. G. for her immune system and they tell us that this will more than likely be a life long issue.  Other than her small size (26 pounds), you would never know she was a preemie! She is very intelligent and doesn’t miss a beat! We have our miracle baby, and are amazed everyday at how strong she is!
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Luke Cheetowalker

Lucas N. ~ Super Hero Alias: Luke Cheetowalker

Luke NAge: 22 months
Weight at Birth: 2 lb, 1 oz
Weeks Gestation: 27 weeks
Time in the NICU: 123 days

Diagnosis, complications, surgeries?
Chronic Lung Disease, Stage 2 ROP, on oxygen for a year

Why should your child be recognized as “Preemie of the Year”?

Despite the fact he has been through more medical tests and procedures than most adults he has never stopped smiling and laughing. He is so silly, and such a happy toddler. He loves his baby sister, and is a people magnet with the most beautiful eyes. He is proof that miracles really do happen, and we are thankful every day for him and his health.
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Wonder Twins Batman and Robin

NICU Reunion, Family Celebration, Hand to Hold Birthday, Photo Contest

Maddox and Chase M. ~ Super Hero Alias: Wonder Twins Batman and Robin

Maddox and Chase MAge: 4 years old
Weight at Birth:  1 lb 9 oz and 2 lbs
Weeks Gestation: 25 weeks
Time in the NICU: 90 days

Diagnosis, complications, surgeries?
Severe prematurity, ROP, lung disease, apnea and PDA surgery

Why should your child be recognized as “Preemie of the Year”?

What happened at today’s baseball game is one of many examples of why my boys are preemies of the year. In our last game of the season, Maddox made a triple play which any baseball enthusiast knows that it is one of the rarest plays in the game of baseball. To help break down this amazing feat, here is a quick rundown of the play. Maddox was playing short stop when a boy at bat hit an air ball heading straight for Maddox. Maddox in his usual attentive self, caught the fly ball, then as another boy from the opposing team approached second base, he tagged the boy out then threw the ball to his team mate who was covering first causing three consecutive outs. Not to be outdone by his twin brother, Chase caught a ground ball and threw it to first base, which is a huge accomplishment for Chase because he prefers hockey. Today was an amazing day of great plays, hits and team work thanks to my preemies of the year. Before my dynamic duo was hitting balls, they were frail 23 weekers fighting for their life. At 23 weeks, my water broke leaving Maddox with very little fluid in his amniotic sac. The threat of early delivery also put Chase in extreme jeopardy. The night my water broke, the doctors told me that if the boys were to deliver at 23 weeks, they would have very little chance of survival or if they survived, they would suffer from lifelong disabilities. Because of my twin pregnancy and ruptured membranes at 23 weeks, I had to remain on hospital bed rest until delivery. Two weeks later, I developed an infection and the boys were delivered by emergency c-section. At 25 weeks, Maddox and Chase entered the world weighing 2lbs and 1lb 9 ounces. Instead of November 6, 2005 being one of the happiest, it was one of the saddest, scariest days of our life. Overnight, I went from joyful expectant mother to a mother who sobbed daily at their bedside in the NICU. Both boys suffered from lung disease, apnea, ROP and other illnesses that plague 25 weekers. On top of a long list of complications, the blood flow to Maddox’s heart was in jeopardy so at 28 weeks, he needed PDA surgery. After a 90 day stay in the NICU, and countless steps forward and more steps back, Maddox and Chase finally came home. Not only are they excelling on the field, but also in school. At a recent parent teacher conference, our very first one by the way, their teacher told us that they both ranked master/proficient in all curriculum categories. For years, I wondered why we weren’t lucky enough to have a story book beginning, but the story that is unfolding before us; one that is filled with sweet moments like today’s triple play or hearing that your boys are math whizzes at school makes the road less traveled that much more rewarding. [Read more...]

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Boogie

NICU Reunion, Family Celebration, Hand to Hold Birthday, Photo Contest

Blake R. ~ Super Hero Alias: Boogie

Blake RAge: 21 months
Weight at Birth: 1 pounds 3 ounces
Weeks Gestation: 24 weeks
Time in the NICU: 122 days

Diagnosis, complications, surgeries?
Low Birth Weight, PDA (surgery), Pulmonary Hemmorhage, Chronic Lung Disease, ROP (RUSH disease), numerous blood transfusions

Why should your child be recognized as “Preemie of the Year”?

My preemie is a true hero. From the first few minutes of his life, he fought numerous odds. For such a tiny guy, his will and strength is truly amazing. Incredibly, he made it through a pulmonary hemorrhage at 36 hours of life. As his body struggled to survive with organs that were underdeveloped, he slowly but surely grew stronger each day. He later underwent PDA surgery. He also underwent an emergency laser eye surgery to help save his vision. He faced many challanges but continued to exceed expectations and statistics. He showed us strength on days that his father and I were weak. Even 21 months later, he is still amazing us with his strong will and huge heart. [Read more...]

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Jackson the Gladiator

NICU Reunion, Family Celebration, Hand to Hold Birthday, Photo Contest

Jackson S. ~ Super Hero Alias: Jackson the Gladiator

Jackson SAge: 4 years
Weight at Birth: 1 lb, 15 ounces
Weeks Gestation: 25 weeks
Time in the NICU: 85 days

Diagnosis, complications, surgeries?
Incompetent cervix, PDA Ligation surgery, numerous infections within the first 3 weeks, over 10 blood transfusions.

Why should your child be recognized as “Preemie of the Year”?

Our Little, Little Gladiator was born at 25 weeks gestation. During the battle to survive, Jackson endured numerous infections. We had to collapse a lung to help it heal. Jackson was given not one but two rounds of surfactant and we started to run out of IV sites. Jackson received over 10 blood transfusions during his first three weeks of life and if it couldn’t get any more complicated… Jackson’s blood type is 0 negative. We thank God every day for Jackson’s ability to fight through all the odds that were against him. We also can’t thank everyone enough for their blood donations and the medical attention received. Jackson was on Nitric and Oxygen and ventilated for 9 weeks. Upon being released, Jackson is considered to have chronic lung disease (mild-moderate). However, this gladiator didn’t take the oxygen with him home; he left it in the NICU and chose to be released on an apnea monitor only. He also decided he wasn’t going to stay until his due date but wanted to be home for CHRISTMAS! December 17, 2006 Jackson was released from his 85 day stay in the NICU.

Jackson’s fighter instinct continued at home as he achieved the milestones we were working on with ECI (Early Childhood Intervention) such as crawling (12 months), walking (14 months) and talking at one month prior to his 2nd birthday which was when we graduated from ECI.

Watch out Russell Crowe, this Gladiator will take you on.

Jackson’s battle may have had a very rough start, but look at the little man now! This family is blessed to have their four year old boy with them. He loves to play with his brother, new sister and friends, read books with the family, go to parks and libraries and for the first time is able to go to “pre-K/mother’s day out program” and Sunday School!

Jackson the Gladiator has been mistaken to be a five year old by many due to his height….what a shock it is for people to find out that he was born at 1lb 15oz and 14 inches long.

Jackson the Gladiator like all micro-preemies and preemies have the strength of many just as Alfred Lord Tennyson said, “My Strength is as the Strength of ten, because my heart is pure.”
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Brave Brody Bear

NICU Reunion, Family Celebration, Hand to Hold Birthday, Photo Contest

Brody C. ~ Super Hero Alias: Brave Brody Bear

Age: 5 months old
Weight at Birth: 2 lb 7 oz
Weeks Gestation: 26 weeks
Time in the NICU: 110 days

Diagnosis, complications, surgeries?
PPROM at 17 weeks gestation; possible NEC, inconclusive but treated; staph infection; chronic lung disease; inguinal hernia; and silent aspiration.

Why should your child be recognized as “Preemie of the Year”?

Brody was a super hero before he was born.  I had Preterm Premature Rupture of Membranes (PPROM) at 17 weeks gestation resulting in severely low amniotic fluid.  Doctors told us that there was an 85% chance that I would go into premature labor within two weeks, and babies could not survive at that gestation.  Because there was a possibility of maternal infection, the doctor said that termination may be necessary.  But, like a super hero, he survived the following two weeks and continued to grow.  Brody defied the odds even as the volume of amniotic fluid dropped, even as our fears increased of immature lung development.  At 24 weeks gestation, I checked into the hospital to continue bed rest.  Brody continued to amaze the doctors and grew in the safety of the womb for another two weeks, four days.

When the contractions started, I was filled with anxiety and wondering whether the 26 weeks, 4 days was long enough to save his life.  Was there enough amniotic fluid for his lungs to develop adequately?  Did his other organs have enough time to develop properly?  He is a super hero, and he survived and became a superstar in the NICU.  After only two days on the ventilator, the doctors switched him to the CPAP.  Except for a worrisome 10 days when an infection weakened him and put him back on the ventilator, Brody grew stronger and healthier.

While in the NICU, his sweet, cuddly nature charmed the nurses, doctors and all who cared for him.  He had endured more needles, heel pricks, spinal taps,  the works in a few months than I have had in my lifetime.  Now at home, he captivates all with just a glance, and brings joy to all he meets.   He is the epitome of a miracle.  This journey with Brody taught me how precious life is, and I cannot wait to see everything that his life will contribute to this world.  Even before he was born, he helped me see the goodness in humanity – the kindness and generosity of so many countless people that provided support without being asked.  Brody’s miraculous life has given me the gift of hope and promise.   I hope his story brings this gift to other families facing similar circumstances.

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Site last updated May 17, 2012 @ 5:35 pm