Jonny McDash

JonathanAge: 2
Weight at Birth: 1 lb 5 oz (600 grams)
Weeks Gestation: 23
Time spent in the NICU: 150 days

My Preemie Power Story:

Jonny is fast. As soon as he could stand, he walked. And as soon as he could walk, he ran. This speed is his greatest strength, and his greatest weakness.

Half-way through his gestation, he thought he was ready to fight supervillains. His sisters pleaded for him to stay put. “No-no-no, baby, don’t come out!” His mother told him it wasn’t time. But there was no slowing down McDash. He burst his bubble and made his escape. A superhero was born.

Jonny’s first stop was the Neonatal Incredible Kid University, or “Niku,” a school for super-kids like him. He learned to do normal baby things like unfuse his eyes and hold his heat. He trained to enter the world as his mild-mannered alter-ego. But even in Niku he was not safe .

Episode1: McDash vs. The Potent Deceptive Alternate (PDA) & Necros Ever Crank (NEC)

Knowing that Jonny McDash would become a formidable enemy, the League of Supervillains (LoS) infiltrated Niku. They whispered to McDash to keep a heart duct open. An open duct would make him faster, they lied. He was still young, so their deception worked. His body slowed. A team of superheroes, “The Doctors” gave him an antidote to close the open duct. LoS heard of this. Upset that their deception had been thwarted, they sent Potent Deceptive Alternate (PDA) to open the duct again. “Surge,” the superhero in scrubs, defeated PDA with two staples and a scalpel. Brilliant! But without wasting any time, the LoS attacked again. This time they sent Necros Ever Crank (NEC) against Jonny’s intestines, the source of his energy and strength. Over a half a foot of intestines died. But once more, Surge came to the rescue, discovering the stealthy villain and sending her packing.

Episode 2: McDash vs. the Rush Reserve Operative (ROP)

Having failed to eliminate Jonny McDash, the enemies sought to neutralize him by taking away his eyesight. To catch the speedy hero, they sent in their fastest Reserve Operative (ROP) – Rush ROP. Armed with an impenetrable protein cloud, Rush ROP attacked McDash’s eyes, threatening to tear them apart from the inside. The operative got more than he bargained for, however, since Jonny and the Doctors were ready with their laser cloud piercer, turning back Rush ROP in record time.

Episode 3: McDash strikes out on his own
The Supervillains kept trying, but McDash had grown strong enough to defeat them easily. Desat, Apnea, and Brady often attacked together. Kidney killer threw him into renal failure more than once, and Anemia showed up again and again. But each time, Jonny McDash and his team of teachers (wearing badges like “RT,” “RN,” “NP,” “OT,” and “PT”) and The Doctors warded them off. When ready, McDash passed his graduation exam (known in-house as the “carseat test”), with flying colors. He was ready for the world!

Next Time on McDash: LoS unleash a top secret project, code-named “Failure to Thrive,” and Dr. Nephros delivers McDash from Acidosis Monster. McDash triumphs again!

Super Hero Characteristics

Primary Superpowers:

Speed, quickness, and super-fastness. Also good at being early and fighting supervillians

Peanut & Butter to the Rescue!!!

Berlyn and Madisyn K. ~ Super Hero Alias: Peanut & Butter to the Rescue!!!

Berlyn and Madisyn K.Age: 3 years
Weight at birth: 3 lb 1 ozs and   1 lb 10 ozs
Weeks gestation: 30 weeks
Time in the NICU: 45 and 58 days

Diagnosis, surgeries, complications?

IUGR and Reverse-end diastolic flow in twin B resulted in delivery, transfusions, PDA, PFO, TPN, failure to thrive,vent, A&Bs, coombs positive, jaundice, Brain bleed grade I, Ng tubes

Why Should Your Children Be Recognized as Preemies of the Year?

From the beginning of time super heroes have roamed the earth in secrecy. Saving lives without asking for anything in return.  Peanut and Butter came to the rescue in a desperate time of need.  When their parents had almost given up hope of ever holding their own children in their arms, they came and saved them. They surmounted all odds, growing in treacherous conditions to bring this couple happiness. We need to thank these heroes for saving this couple from such an empty life. And for bringing joy to all those in contact with them.

Using Three Or More Characteristics of a Super Hero, Please Describe Your Child

A hero is an ordinary person who does extraordinary things. From the beginning Berlyn & Madisyn have been EXTRAORDINARY. They started off in a petri dish, where they outgrew 12 other cells before making their way to the womb (IVF). At 23 weeks Madisyn was diagnosed with IUGR. She wasn’t receiving the nutrients she needed and was a month behind in growth. The pressure in her umbilical cord was too high. She was DETERMINED to survive past the 26 weeks doctors hoped for. Her PERSEVERENCE got her and her sister to 30 wks. Berlyn SACRIFICED a full term pregnancy so that Madisyn had a chance to live. She could have made it to 40 wks if her sister had died. They exhibited FORTITUDE through their 6 and 8 week stays in the NICU away from their Mommy and Daddy. They ENDURED the poking, prodding, and all the other things associated with being premature. Three years after their birth story they still exhibit these characteristics. When Madisyn cries, Berlyn SELFLESSLY gives her “Teddy” to make Madisyn feel better. They always make sure the other is not forgotten about. “Where is sister’s cracker” or “Sister wants the blue crayon.” When we are out, Madisyn is always ready to spreads the love.  She tells the cashier “love you” or they give a random lady at the store a hug. With their big smiles and bright eyes, they always know how to brighten your day. These girls are extraordinary in every way! They are my HEROES!

Miracle Twins

Aiden and Ethan S ~ Super Hero Alias: The Miracle Twins

Aiden and Ethan S.

  • Current age: 6 years
  • Weight at birth: 1lb 14oz/1lb 6oz
  • Weeks gestation: 24 weeks
  • Time in the NICU: 150 days

Diagnosis, surgeries, complications?

Micro-preemie twins:  PDA (resulting in heart surgery), ROP (resulting in eye surgery), Failure to Thrive (resulting in G-tube surgery), Double Hernia (resulting in hernia repair surgery), Chronic Lung Disease (resulting in 1 year on O2), brain hemorrhages, seizures, cerebral palsy, rickets, sepsis, social sensitivity.

Why Should Your Children Be Recognized as Preemies of the Year?

My twins should be recognized as Preemies of the Year because they have struggled so hard for the last 6 years to overcome unbelievable odds and obstacles.  They were given a 5% chance of surviving and being healthy – and after 6 months in the NICU, 3 years in isolation, numerous surgeries and hospitalization, and years of therapy – I’m so happy to say that they’re doing amazingly well and just started kindergarten.

They’ve had to work so hard during their short lives just to live and to grow, I feel like their childhood and opportunities to just have fun have really been affected.  As parents facing medical bills that have run in the hundreds of thousands of dollars, we haven’t been able to focus on much other than just providing the basics.

This Disneyland trip would be our first family event as a “normal” family and would mean the world to all of us.

Using Three Or More Characteristics of a Super Hero, Please Describe Your Children.

Aidan and Ethan are more than just strong, brave and resilient.  They are inspirational to all that meet them.  Not only did they encounter so many obstacles in their lives – they have gone on to test on the genius scale.  They are absolutely brilliant.  Both boys taught themselves how to read at age 2. Now they are studying science, math, and foreign languages.  They are truly inspirational and I believe they will go on to do amazing things – possibly even cure prematurity!

Note (posted 10/29/12):

I just wanted to sent you a note saying thanks, and add a personal story around my boys’ entry “Miracle Twins”.

Aidan & Ethan were born at 24 weeks, had a 5% chance of surviving and being healthy, and spent 6 months in the NICU and 3-1/2 years in isolation.  Needless to say, it’s been a LONG journey for them (and us!)

It was kind of a family joke while they were in the NICU, I would tell them “just survive this and I’ll take you to Disneyland.”  As they got older and had more complications, more surgeries, and more hospitalizations, I continued to tell them “someday you’ll be healthy and we’ll go to Disneyland”.  Disneyland got to be the trigger of healthy.

This year, Ethan had his feeding tube removed.  For the first time ever my boys are tube/wires/monitor free!  And of course –  now they’re saying It’s time for Disneyland! I feel like this competition couldn’t have come at a better time for us.  My kids are finally healthy and they deserve this so much.  This would allow us to give them this experience.

The Triumphant Trio

Lathan, Lauren, Logan G. Lathan, Lauren, and Logan G ~ Super Hero Alias: The Triumphant Trio

  • Current age: 6 years
  • Weight at birth: Lathan – 2lbs 14oz, Lauren – 2lbs 12oz, Logan – 2lbs 10oz
  • Weeks gestation: 28 weeks
  • Time in the NICU: 52, 67 & 76 days

Diagnosis, surgeries, complications?

  • All three had PDA ligation surgery at 3 days old
  • Chronic Lung Disease
  • Necrotizing Entercolitis (Lauren)
  • Both boys IVH (Lathan bilateral grade 2’s and Logan a 3 & a 4)
  • Pulmonary Edema (Logan)
  • Failure to Thrive (Lauren)
  • Pyloric Stenosis surgery (Logan)
  • ROP for all three (though thankfully none required surgery)
  • Severe reflux (Lauren & Logan)
  • Hernia Surgery for both boys plus all the other “normal” preemie obstacles.

They came home on oxygen, a feeding tube and apnea monitors.

Why Should Your Children Be Recognized as Preemies of the Year?

My Triumphant Triplets should be Preemies of the Year because of the resiliency, courage and strength they’ve shown these past few years.  They have the power to help those in the thick of adversity, see that there are happy endings to even the roughest beginnings.

Using Three Or More Characteristics of a Super Hero, Please Describe Your Children.

The Story of The Triumphant Trio:

A long time ago, in a NICU far, far away…three tiny triplets were beginning the fight of their lives.  Born just hours shy of 28 weeks, not quite ready for the real world, these babies required super powers to help them breathe, eat, keep warm and fight infection.  Armed with an enormous amount of prayer warriors, parents that loved them more than they could imagine and a spectacular team of doctors, nurses and specialists, these super babies embarked on the fight of a lifetime.

As the days, weeks and months passed, nasty Villains tried to get in the way of the trios good doings.  Unwilling to give in, the resilient three continued to grow their magnificent powers and battle through any and all ailments thrown their way including chronic lung disease, brain hemorrhages and necrotizing enterocolitis to name a few, in addition to surgeries and procedures that would make grown superheroes cry.  Their vision and hearing were threatened as was their ability to walk, run and play someday.  The outcome looked grim at times but the tiny triplets never gave up.  They fought through the pain, fought for every breath they took and somehow knew something much better was waiting for them at home.

Though separated during their time in the NICU, once home these three quickly became the best of friends and with their combined strengths found they could conquer just about anything.   Today they are healthy, thriving 6 year olds with no lingering complications from their early arrival.  They are united in raising awareness for premature births and spreading the news near and far that even the tiniest of superheroes with some of the biggest battles to overcome can prevail and become triumphant.

They will forever be known as The Triumphant Trio!

Warrior Princess Ericka

Ericka L. ~ Super Hero Alias: Warrior Princess Ericka

Ericka LAge: 7 years old
Weight at Birth: 1 pound 4 ounces
Weeks Gestation: 27 weeks
Time in the NICU: 107 days

Diagnosis, complications, surgeries?
Failure to thrive, delayed, short gut, malabsorption, POV

Why should your child be recognized as “Preemie of the Year”?

My daughter was born early kicking and streaming. Followed by 10 surgeries from tracheostomy to g-tube. She has overcome having RSV twice and being in a coma for 3 months. To being in a respiratory code for four and half hours and living. She fought for four years to live and came up being the strong princess. She has fought to survive and made it through thick and thin. She is all preemie power on high. She was a caterpillar that came out and is now flying high as a butterfly in full color.  [Read more…]