Devious Luke

Luke R. ~ Super Hero Alias: Devious Luke

Luke RAge: 8 months old
Weight at Birth: 4 lbs 14 oz
Weeks Gestation: 33 weeks
Time in the NICU: 43 days

Diagnosis, complications, surgeries?

GERD, eye problems and developmental delay

Why should your child be recognized as “Preemie of the Year”?

My son Luke has had a rough start as do most other preemies, but he has an attitude that I admire. He was on a ventilator and chest tube for a week, then oxygen off and on. He had his ups and downs in his 43 day NICU stay. The NICU was a very uncertain time not knowing what would come next, but he has always amazed me with his strength and determination. Now at 8 months old, he has never been out of the hospital much longer than a month. He is always a smiley happy baby, even when most other babies even some adults would be frustrated.  He was born 7 weeks early but is mommy’s little fighter.

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GastroKids

GastroKidsGastroKids provides easy to understand information about the treatment and management of pediatric digestive conditions for children and parents. They have a wealth of information in multiple languages (English, Spanish and French) to help parents and teens navigate how specific conditions are diagnosed, treated and managed for the short- or long-term. They have downloadable guides, videos, podcasts and pre-screened external links. Patients can also connect with them on Facebook and Twitter.

In addition to their pediatric digestive disorders A-Z Glossary, GastroKids has collected in-depth information on the following most common conditions:

  • Pediatric Celiac Disease, a serious condition caused by a permanent intolerance for gluten–a protein found in wheat, rye, and barley.
    Daddy feeding in NICU by Marvin's Dad

    ©Flickr/Marvins_Dad

  • Eosinophilic esophagitis (EoE), an inflammatory condition in which the wall of the esophagus becomes filled with large numbers of white blood cells causing symptoms similar to GERD.
  • Inflammatory Bowel Disease, which includes both ulcerative colitis and Crohn’s disease.
  • Reflux and GERD (gastroesophageal reflux disease) – Reflux or spitting up is very common in young children. It becomes GERD when reflux causes troublesome symptoms such as weight loss, bleeding, respiratory problems or esophagitis.
  • The Nutrition and Obesity section gives information about healthy eating and fitness.

GastroKids is patient outreach and education effort of NASPGHAN – the North American Society for Pediatric Gastroenterology, Hepatology and Nutrition – an organization of more than 1,400 pediatric gastroenterologists, predominantly in 46 states, the District of Columbia, Puerto Rico, Mexico and 8 provinces in Canada.

Site last updated May 23, 2017 @ 3:00 pm