Age: 6 months
Weight at Birth: 1.6 kilos
Weeks Gestation: 33
Time spent in the NICU: 101 days
My Preemie Power Story:
At 23 weeks the doctors thought I was about to give birth, but after a high risk pregnancy that included surgery and months of hospitalization, Avigayil hung in for an amazing 10 more weeks and was born by c-section at 33 weeks. Right from the start there were surprises. She had IUGR and severe RDS. She was not breathing at birth and it took a few hours for the doctors to stabilize her. During her NICU stay she was diagnosed with severe BPD, GERD, Pulmonary Hypertension, Osteoporosis, FTT and anemia, among a host of other more common preemie problems. She had 3 blood transfusions, was on nitric oxide for 2 weeks and was intubated for 3 weeks.
From the beginning our little red head was a fighter. While sedated on morphine she none the less managed to extubate herself 3 times. Even though she was and still is confronting challenges that no one expected, she is a very happy and social baby.
While in the NICU became the first preemie to use a newly approved machine that would allow her to go home on Vapotherm. It is now in use in the NICU and at homes here in Israel. She is honored to be part of such an amazing breakthrough for preemies and their parents.
Now at 6 months of age she is home and on oxygen and a monitor 24 hours a day. She has an NG tube for feeds with a kangaroo pump and inhalations every 4 hours.
Despite her hard life so far and having to fight for every breath, Avigayil treats every person who comes near to a giant smile with her generally sunny disposition. She loves people and makes friends wherever she goes.
We hope that she keeps that love of people and love of life with her always as she teaches us every day just how valuable life can be.
Super Hero Characteristics:
Avigayil can fly into the hearts of every one around her faster than a speeding bullet. With the incredible ability to charm anyone she can even make the most serious and experienced doctors and nurses smile and coo.
She has amazing agility seen in her talent of being able to remove any tube or cord placed on/in her within 5 minutes, even under sedation!
Mind Control! She brightens peoples day and has touched the lives of people she has never even met as they keep up with her story online.
She goes on every day with her super strength and determination. It is that quality that is helping her parents and 4 brothers and sisters to make it through each day.