The Ultimate Overachiever

NICU Reunion, Family Celebration, Hand to Hold Birthday, Photo Contest

Lauren K. ~ Super Hero Alias: The Ultimate Overachiever

Lauren KAge: 12 weeks
Weight at Birth: 4 lbs, 2 ounces
Weeks Gestation: 31 weeks, 4 days
Time in the NICU: 30 days

Diagnosis, complications, surgeries?
She suffered from NEC after 2 weeks in the NICU, and also has a heart murmur caused by PPV and PFO.

Why should your child be recognized as “Preemie of the Year”?

Lauren has shown an amazing strength and perseverance since the day she arrived. She conquered a month-long stay in the NICU, including overcoming NEC with flying colors. She is on her way to being the ultimate overachiever, not letting anything get her in way of enjoying life to the fullest. Her smile lights up the room, and she has brought incredible joy and love to our family. She is my inspiration, and has proven to me time and again what a miracle she truly is. I have a feeling she will be giving her big brother, Harrison, a run for his money in no time!
[Read more...]

Share

The Lion Heart

NICU Reunion, Family Celebration, Hand to Hold Birthday, Photo Contest

Andrew L. ~ Super Hero Alias: The Lion Heart

Andrew LAge: 3 years
Weight at Birth: 2 lbs, 2 ounces
Weeks Gestation: 26 weeks
Time in the NICU: 70 days

Diagnosis, complications, surgeries?
severe acid reflux, broviac surgery, and NEC

Why should your child be recognized as “Preemie of the Year”?

He came out fighting all 2 pounds of him ready to take on the world (a little bit of Napoleon Syndrome perhaps?). Upon coming into the world at 3:14 am, he made his presence known. He took in a deep gulp of air, filled his lungs to the brim and wailed. I was able to get a quick glance of him before he was whisked away, intubated twice (he ripped the first one out) and hurried to the nicu fighting doctors off all the way. In that quick glance, I knew he would make it. I saw so much fight and passion all wrapped up in one frail small package. Once in the NICU, he continued to fight the doctor’s diagnosis, the odds and the nurses trying to swaddle him (he is still a little claustrophobic). After 70 days, a tough bout with NEC and a Broviac surgery, he came home. Now why should my son out of all be chosen out of all these little miracles to be “Preemie of the Year”? He is a fighter just like all other preemies. He has a lust for life just like all other preemies. But he approaches life with such moxie, such fearlessness that even I sometimes envy his bravery sometimes and his unwavering determination to do things his own way. He is a Lion Heart through and through!

[Read more...]

Share

Super Luke

NICU Reunion, Family Celebration, Hand to Hold Birthday, Photo Contest

Luke W. ~ Super Hero Alias: Super Luke

LukeAge: 13 months
Weight at Birth: 3 lbs 9 oz
Weeks Gestation: 36 weeks, 3 days
Time in the NICU: 44 days

Diagnosis, complications, surgeries?
Luke was initially diagnosed as an IUGR (intrauterine growth restriction) baby – he just did not grow well in utero.  After birth, we discovered two heart defects, PDA and VSD, a pelvic kidney, bilateral arachnoid brain cysts and a tethered spinal cord.  Our biggest complicating factor?  Developing a severe surgical case of necrotizing enterocolitis (NEC) on day nine.  Most recently, he was diagnosed with plagiocephaly and brachycephaly, hence the reason for his awesome Aggie football helmet!

Why should your child be recognized as “Preemie of the Year”?

Luke is a fighter.  Luke is a miracle.  Luke is complicated.  Luke is a stinker.  Luke is an inspiration.  Even after all the setbacks with his additional diagnoses, he just kept making slow and steady progress.  After NICU discharge we thought we were in the clear!  Then, in the span of seven months, we returned to Dell Children’s for four more surgeries and a total of seven hospital stays.  Through the past year, we have grown into more compassionate parents to our own children, and others who have special needs. I hope Luke’s scars never fade away, they are a reminder of how far we’ve come.

[Read more...]

Share

Brave Brody Bear

NICU Reunion, Family Celebration, Hand to Hold Birthday, Photo Contest

Brody C. ~ Super Hero Alias: Brave Brody Bear

Age: 5 months old
Weight at Birth: 2 lb 7 oz
Weeks Gestation: 26 weeks
Time in the NICU: 110 days

Diagnosis, complications, surgeries?
PPROM at 17 weeks gestation; possible NEC, inconclusive but treated; staph infection; chronic lung disease; inguinal hernia; and silent aspiration.

Why should your child be recognized as “Preemie of the Year”?

Brody was a super hero before he was born.  I had Preterm Premature Rupture of Membranes (PPROM) at 17 weeks gestation resulting in severely low amniotic fluid.  Doctors told us that there was an 85% chance that I would go into premature labor within two weeks, and babies could not survive at that gestation.  Because there was a possibility of maternal infection, the doctor said that termination may be necessary.  But, like a super hero, he survived the following two weeks and continued to grow.  Brody defied the odds even as the volume of amniotic fluid dropped, even as our fears increased of immature lung development.  At 24 weeks gestation, I checked into the hospital to continue bed rest.  Brody continued to amaze the doctors and grew in the safety of the womb for another two weeks, four days.

When the contractions started, I was filled with anxiety and wondering whether the 26 weeks, 4 days was long enough to save his life.  Was there enough amniotic fluid for his lungs to develop adequately?  Did his other organs have enough time to develop properly?  He is a super hero, and he survived and became a superstar in the NICU.  After only two days on the ventilator, the doctors switched him to the CPAP.  Except for a worrisome 10 days when an infection weakened him and put him back on the ventilator, Brody grew stronger and healthier.

While in the NICU, his sweet, cuddly nature charmed the nurses, doctors and all who cared for him.  He had endured more needles, heel pricks, spinal taps,  the works in a few months than I have had in my lifetime.  Now at home, he captivates all with just a glance, and brings joy to all he meets.   He is the epitome of a miracle.  This journey with Brody taught me how precious life is, and I cannot wait to see everything that his life will contribute to this world.  Even before he was born, he helped me see the goodness in humanity – the kindness and generosity of so many countless people that provided support without being asked.  Brody’s miraculous life has given me the gift of hope and promise.   I hope his story brings this gift to other families facing similar circumstances.

[Read more...]

Share

Oli Gator

NICU Reunion, Family Celebration, Hand to Hold Birthday, Photo Contest

Oli D. ~ Super Hero Alias: Oli Gator

Current Age: 21 months
Weight at Birth: 2 lbs 15 oz
Weeks Gestation: 29 weeks
Time in the NICU: 58 days

Diagnosis, complications, surgeries?
Normal preemie breathing issues, several transfusions, staph infection, the list goes on and on. But, the most complicated issue was his NEC (necrotizing enterocolitis).  At 10 days he had to have surgery for a fully perforated bowel.

Why should your child be recognized as “Preemie of the Year”?
On January 5th, 2009 our son came into the world very suddenly.  My husband and I love a good adventure and true to form the first months of Oli’s life were that.  We joke and say he was just so eager to join in the adventures. Maybe not the adventure we had bargained for, but one that we are so proud to share with others.  When I think of Oli that word “adventurous” fits so well.  He never backs down from anything and excepts all challenges willingly.  Whether it has been overcoming NEC or spending 20 minutes building a gigantic Lego tower.  He always tries.

I cannot imagine what he would be like had our birth story been different.  So much of his personality to me reflects the tiny little fighter that he was and still is today.  I am so proud to say that my son is a preemie and even though I cry just about every time that I think about it I would not trade any of our experiences with him.  What we have been through as a family makes my son special.

[Read more...]

Share

Site last updated May 17, 2012 @ 5:35 pm