Age: 2 years
Weight at Birth: 1lb 4 ozs
Weeks Gestation: 29 weeks
Time spent in the NICU: 118 days
My Preemie Power Story:
My beautiful daughter was given a 10% chance of survival. She overcame so much during her 118 day NICU stay. She was a fighter all the way. She had all the usual micro preemie problems, including NEC. She had an umbilical hernia, sacral dimple and severe edema. She was on a vent for 51 days, and came home on oxygen.
The NICU days were just unbearable, not knowing if she would live or die. I learned to lean on God more than I ever had before, lots of bedside prayers. The first time I held her, she was well over 2lbs and 1 month old. So small, but yet so mighty. I had never in my life seen a preemie until her. What amazing things the doctors can do these days to keep these tiny super heroes alive!
When my daughter came home she was 5lbs 14ozs. She had a heck of a time eating, and as a result she was a tiny 11lbs at one year old. Despite her small size at 18 months, she learned to crawl, and at her second birthday she walked. She does not eat any food as of yet. We are in Feeding, Speech, Occupation and Physical Therapies. She has AFOs for her feet because her gait is very off. She doesn’t talk yet, but I am hopeful she will soon learn. She has her fair share of troubles still. She has a serious Developmental Delay, she is G tube fed, she amazes me.
We see so many specialists who have no answers as to why she is not progressing very well. I am proud of her everyday, for never quitting. I can’t communicate with her yet, but I know she understands how much I love her. I was not always the best mother, before I got her. I feel like I have been redeemed in my role as a mother caring for her special needs day in and day out. The traumatic birth, and long NICU stay, then all the issues that follow a micro preemie through life, don’t seem so bad, when I see her smile. Other days, when its seems like all hope is fading, I still can just think of how hard she fought just to live, all of the things she had to face as a 1lb infant in this big scary loud cold world when she should have been in my womb. Well, she is a super hero. A miracle is what I like to refer to her as, OUR FAMILY MIRACLE! I can’t imagine one day of my life without her, thank you, God, for Gabby the Great!
Super Hero Characteristics:
Strength, Fierceness, Persistence