Super Twinies!

Madison & Makenzie B. ~ Super Hero Alias: Super Twinies!

Madison and Mackenzie BAge: 2 years old
Weight at birth: 3lbs 6oz and 3lbs 4oz
Weeks gestation: 31 weeks
Time in the NICU: 42 & 49 days

Diagnosis, surgeries, complications?

31 weekers, One baby had e-coli which needed a spinal tap, sleep apnea and breathing issues

Why Should Your Child Be Recognized as Preemie of the Year?

In my eyes after going through what I went through all preemies should be preemies of the year :) However, my twins should be recognized as “Preemie(s) of the Year” because of their life because given the worst hands of cards they managed to make our home a full house in weeks. Born at 31 weeks due to Baby A placenta abruption, our family was told this whole thing will be a 50/50 battle. As with any and all preemie families, everyday is a new battle, victory and roller coaster. Our girls pulled through and pulled us through what we thought was a never ending pain feast. In their 6 and 7 week NICU journey myself and my family knew true love, faith and the precious gift of life.

Using Three Or More Characteristics of a Super Hero, Please Describe Your Child.

Madison’s Super Hero characteristics are strong, charismatic, fighter, and brave.

Makenzie’s Super Hero characteristics are fighter, fast as lightning, brave, and strong.

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Jennifer Fagan and Her Daughter Natalie Grace

Fagan FamilyJennifer Fagan had her daughter Natalie Grace at 26 weeks due to placental abruption. She and her husband Mike have two other children. In addition to serving as a Helping Hand Peer Mentor, Jenn has also been helping facilitate a NICU support group at North Austin Medical Center. She shares below what volunteering to help other parents means to her.

How did you find out about Hand to Hold?

I can’t remember who specifically shared it with me, but it was one of the moms in our mom’s group that met once a week at the hospital while our kiddos were in the NICU.

What made you want to volunteer? What have you gotten out of it?

Hoping to be there for other families was our first reason. There were times we felt alone or isolated. We didn’t know anyone who had gone through delivering a premature baby. Two different opportunities really showed us the value in having someone who has gone through what you’re being faced with to support you. The first was through a weekly mom’s group for the moms with babies in the NICU. The relationships I developed through those get-togethers provided me with comfort, laughter, shared tears, strength and understanding. Second, we received an email from a family at our church who had heard of what we were going through and they reached out to us, listened, prayed and encouraged us. These things helped us to see first hand how impactful that type of support can be. To have an opportunity to be there for someone no matter how great or small, just to let them know that you are there for them, is our hope. We also want to do our best to make positive things come forth from a tough time in our life. [Read more...]

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The Corporate Man

NICU Reunion, Family Celebration, Hand to Hold Birthday, Photo Contest

Levi T. ~ Super Hero Alias: The Corporate Man

Levi TAge: 16 months
Weight at Birth: 2 pounds 10 ounces
Weeks Gestation: 28 weeks
Time in the NICU: 70 days

Diagnosis, complications, surgeries?
breeched, placenta abruption

Why should your child be recognized as “Preemie of the Year”?

It’s a long story……., 20 year sperm from my husband when he had testicular cancer, 4 rounds of IVF, born on his daddy’s birthday, a passionate boy who is very strong, who does everything in his time, when he is ready. [Read more...]

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Baby John

NICU Reunion, Family Celebration, Hand to Hold Birthday, Photo Contest

John L. ~ Super Hero Alias: Baby John

John LAge: 1 year old
Weight at Birth: 4 pounds 7 ounces
Weeks Gestation: 32 weeks
Time in the NICU: 4 weeks

Diagnosis, complications, surgeries?
Placental Abruption with Emergency C-section, Down’s Syndrome-Trisomy 21, Hypotonia (low-muscle tone), Adenoid removal surgery, Plagiocephaly (flat head syndrome)

Why should your child be recognized as “Preemie of the Year”?
John Ryleigh has fought for his life from week 4 of gestation, with a very complicated pregnancy.This angel was determined to come early and grace us with his presence.He survived a placental abruption with an emergency c-section. JR was diagnosed with Down’s Syndrome and was struggling with his hypotonia. He became a superbaby in the NICU fighting to accomplish everything quickly,so he could go home and be with mommy and daddy just after 4 wks. Now,1 year old, JR has been seen by 9 specialists, to clear him of any future problems. He fights to gain strength at PT & OT weekly & accomplishes more and more each day. He is the most determined child,who tries to crawl before he can hold his head up,who tries to walk before he can sit.Anyone who meets John Ryleigh is awarded the biggest and brightest smile ever seen! He is the happiest lil angel & will be proud to show you. JR is always remembered and becomes famous whereever he goes!.

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Amazing Grace

NICU Reunion, Family Celebration, Hand to Hold Birthday, Photo Contest

Natalie F. ~ Super Hero Alias: Amazing Grace

Age: 6 months old
Weight at Birth: 1 lb 13 oz
Weeks Gestation: 26 weeks
Time in the NICU: 104 days

Diagnosis, complications, surgeries?
Placental Abruption. Level II brain bleed, Atrial Septal Defect (ASD), High Blood Pressure.

Why should your child be recognized as “Preemie of the Year”?

As we think about Natalie’s journey in the NICU we have nothing but thankfulness for this perfect and precious life. Through her birth, growing and surviving we have learned a lot about our family and our hearts. Through God, Natalie was able to touch the hearts of many people in our community, church, family and strangers. We have been home now for over two months and continue to hear about how God is moving through the story of a tiny, spunky and strong miracle that blessed our family. God has shown us through Natalie’s journey what really matters in life and how we are able to persevere through hard, uncertain times with the help of Him and the community of people he places around you. She has provided us the opportunity to love and live our lives like never before. We are better parents to her, Grant her big brother and Olivia, her big sister having gone through this. <3

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Site last updated May 21, 2013 @ 9:13 pm