General Grant

GrantAge: 19
Weight at Birth: 1 lb. 14 oz
Weeks Gestation: 26 1/2
Time spent in the NICU: 12 weeks

My Preemie Power Story:

Preemie Power Story General Grant was a fighter from the start. Born at just over 26 weeks, this “wimpy white boy” was given a 50/50 chance of making it by the doctors. If he made it, they said he would face many challenges. His first challenge was to have the nurses tie him down so he would not extubate himself. He spent 7 weeks on a ventilator. They had trouble keeping his blood pressure steady. We were called 3 times to the hospital because they thought things looked bleak and they did not know if he would make it through the night. He was fed through a tube for 2 months. Then came the ROP study. They found that his retinopathy looked pretty bad, and even with laser and cryosurgery, maybe a 50% chance that he would not see. He had this surgery when he was just under 3 pounds. [Read more…]

The Wiggle Worm

EdgarAge: 10 months, 20 days
Weight at Birth: 1 lb 2 oz
Weeks Gestation: 23
Time spent in the NICU: 153 days

Preemie Power Story:

Our story is no different than any other. But they all have their own special meaning. Edgar The Wiggle Worm was born at 23 weeks, also known as micro-preemie, November 25, 2013, weighing in at only 1 pound and 2 oz. We will soon be celebrating his first birthday since he was born. He would always find a way out of his snuggle, knock out his feeding tube and respiratory tube. When the nurses would place him on his belly, he would be so comfortable he didn’t like his assessments. It was always a challenge trying to get through them with out his heart rate dropping or his respiratory going down. He looked like a little man, long eyelashes, dark eyebrows and a small hairy back. As he is growing, he shows us he still has that strength he had while in the NICU.

Having surgery at less than 1 month of being born and another at almost 4 months of being born, a feeding tube for about 4 months, and sometimes not being able to be fed due to having problems with his stomach, and having oxygen support for about 3-1/2months, Edgar is a miracle preemie.

Now at almost being a year old he is one tough Wiggle Worm. He rolls all over the floor, loves to jump around his bouncer.

We are thankful for everyone that helped our Wiggle Worm fight for his life. He is our little miracle preemie.

Super Hero Characteristics:

Loves to wiggle his way out of trouble, drinks his super milk, and uses his strong legs to play.

Site last updated March 21, 2017 @ 2:17 pm