Episode 55: Living with Hypoplastic Left Heart Syndrome

Guest: Kasie Marek, Heart Mom & 2-time Cancer Survivor

As we celebrate American Heart Month, heart mama and two-time cancer survivor, Kasie Marek, speaks openly and honestly about what it’s like to have a son with HLHS. We have a beautiful discussion about the realities of caring for a child with a serious and rare heart condition.

In this episode, we chat about:

  • What is Hypoplastic Left Heart Syndrome (HLHS)?
  • How does HLHS affect a family: emotionally, logistically and financially?
  • What are the treatment options available for HLHS?
  • What are the effects of a heart transplant on a family?
  • What’s the best advice for a fellow heart mama?

Kasie Marek is a medical mom trying to figure it all out, one day at a time. A two-time childhood cancer survivor who entered the “nurse” mom world after her first-born, Noah, was born with Hypoplastic Left Heart Syndrome (HLHS). Now, she’s trying to navigate the everyday life of medical to-do lists, while still being a MOM, WIFE, and prioritizing self-care.

Connect with Kasie:

Instagram: @laughingafterlemons

Facebook: Kasie Helpz Kids

Websites: laughingafterlemons.com and khkidz.org

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This page was last modified on Feb 22, 2023 @ 11:29 am. If you see any information that needs to be updated or corrected, please contact info@handtohold.org.