“I don’t ever want another NICU parent to feel alone like I felt.”
Alone is exactly how Hand to Hold founder Kelli Kelley felt after she delivered her son, Jackson, at 24 weeks, weighing just one pound, eight ounces. Her baby was alone, fighting for his life in the NICU. Her husband was alone, fielding overwhelming information from doctors and nurses. And she was alone in her room, recovering from an emergency C-section and wondering if her baby would survive.
Despite being surrounded by friends and family, Kelli lacked the support she craved – someone to hold her hand through the difficult road of being in the NICU and bringing home a medically-fragile child. It was this need that inspired Kelli to start Hand to Hold, a peer support network for NICU and bereaved families.
Hand to Hold helps families before, during, and after a NICU stay and infant loss by providing powerful resources for the whole family, and most importantly, one-on-one mentoring from someone who has been there.
WHAT WE DO
Our resources include in-hospital programs, articles and blogs, podcasts, social networks and trained peer mentors. All were designed with the emotional, physical and social needs of the whole NICU family – including siblings and grandparents. Our caring professional, experienced team comprised of NICU graduate and bereaved parents are trained as certified Peer Support Specialists through the state of Texas. These Family Support Specialists uses their personal and professional experiences to ensure all Hand to Hold programs and services work for our NICU families, at every step in the journey.
Hand to Hold focuses our support, resources, and programs around four central strengths:
From Trained, Supervised NICU Graduate Parents
Whole Family Care
Including Siblings and Grandparents
Psychosocial and Emotional Support
Crucial for Improved Outcomes
NICU and Beyond
Antepartum through Childhood
Hand to Hold is an active member of the National Perinatal Association and its Family Advocacy Network. We are a founding member of the Preemie Parent Alliance and active in the National Coalition for Infant Health. For information on speaking opportunities, visit our newsroom.
Hand to Hold is a nonprofit 501(c)3 parent support organization, and information and resources provided here do not intend to take the place of the relationship between a patient and personal physician.