You don’t have to walk this journey alone. The following organizations and support groups specialize in helping families who have experienced the loss of a pregnancy or a baby at any time. If you know of other resources that should be added to this list, please contact us.
Listen to Hand to Hold’s NICU Love & Loss podcast, a podcast for bereaved families on the difficult journey after losing a child.
Bliss: for babies born premature or sick
Bliss provides support and information on making critical care decisions, palliative care, and coping with the death of an infant.
Carrying to Term
Carrying to Term provides information and support for families who have received a prenatal diagnosis and choose to continue a terminal pregnancy.
Center for Loss in Multiple Births
CLIMB provides parent-to-parent support for those who have experienced the death of one or more twins or higher multiple birth children at any time from conception through birth, infancy and early childhood. CLIMB also assists extended families, caregivers, twins and multiples organizations and others who are seeking to understand and support the needs of parents with a multiple birth loss.
The Compassionate Friends
The Compassionate Friends provides highly personal comfort, hope, and support to every family experiencing the death of a son or a daughter, a brother or a sister, or a grandchild, and helps others better assist the grieving family.
First Candle is dedicated to reducing the rates of Sudden Infant Death Syndrome (SIDS), Sudden Unexpected Infant Death and preventable Stillbirths. They are committed to educating caregivers and families and supporting research, as well as offering bereavement support for grieving families.
The NEC Society is the world’s first and only activist-based, clinician/family collaborative organization specifically focused on the understanding, prevention and treatment of necrotizing enterocolitis (NEC).
Sands: Stillbirth & neonatal death charity
This UK organization supports anyone affected by the death of a baby, working to improve the care bereaved parents receive, and promoting research to reduce the loss of babies’ lives.
Share Pregnancy and Infant Loss Support
Share Pregnancy & Infant Loss Support is a community for anyone who experiences the tragic death of a baby. Shares serves parents, grandparents, siblings, and others in the family unit, as well as the professionals who care for grieving families.
Still Standing: Surviving the Aftermath of Child Loss and Infertility
This online magazine strives to help you embrace life for everything that it is after experiencing the loss of a child or infertility.
Local Organizations (Austin, TX)
Austin Center for Grief and Loss
The Austin Center for Grief & Loss is focused on grief and trauma with the mission to assist children and adults as they move from loss to life, transforming their grief through therapy, support, education, training and consultation.
Healing Hearts: Ronald McDonald House Charities of Central Texas
The Healing Hearts program at RMHC of Central Texas offers bereavement support and burial assistance for families in Central Texas, including the HOPE Seminar, a free six-week support group for families experiencing perinatal and infant loss.
One Wing Foundation
One Wing Foundation’s mission is to raise and distribute funds to non-profit organizations that provide resources for the medical, physical and grief recovery of bereaved parents who have or will endure pregnancy and infant loss in the state of Texas. They also provide care boxes, a memory wall and resources and articles on coping with loss.