Blake R. ~ Super Hero Alias: Boogie

Age: 21 months
Weight at Birth: 1 pounds 3 ounces
Weeks Gestation: 24 weeks
Time in the NICU: 122 days

Diagnosis, complications, surgeries?
Low Birth Weight, PDA (surgery), Pulmonary Hemmorhage, Chronic Lung Disease, ROP (RUSH disease), numerous blood transfusions

Why should your child be recognized as “Preemie of the Year”?

My preemie is a true hero. From the first few minutes of his life, he fought numerous odds. For such a tiny guy, his will and strength is truly amazing. Incredibly, he made it through a pulmonary hemorrhage at 36 hours of life. As his body struggled to survive with organs that were underdeveloped, he slowly but surely grew stronger each day. He later underwent PDA surgery. He also underwent an emergency laser eye surgery to help save his vision. He faced many challanges but continued to exceed expectations and statistics. He showed us strength on days that his father and I were weak. Even 21 months later, he is still amazing us with his strong will and huge heart.

Using three or more typical characteristics of a Super Hero, please describe your child.

My tiny hero was so brave as he grew and became strong without the comfort of mommy’s tummy. The new sounds and environment that he was abruptly placed into, coming from the warmth and proctection of mommy’s was certainly shocking. Having had such tranparent skin and underdeveloped organs, he was very sensitive to touch, sound and medical care. His eyes were still sealed for days after his birth. We knew how strong Blake was from the few days when he survived a pulmonary hemorrhage. Blake faced pain and discomfort, fear and uncertainty, head on with a strong drive to overcome. He clearly wanted to be with us and his twin sister, as he beat many odds. Blake’s nickname is Boogie because he has always (even in utero) been on the move. He has always known he has things he wants to do.