Our online repository of articles is designed to support you no matter what stage of the journey you are on with your child now. Whether you’ve been placed on bedrest, have a child currently in the NICU, have a child who has graduated from the NICU years ago or are grieving a loss, we hope this information, organized by topic, will provide timely information and perspective to help you move forward in the care of yourself, family and your precious child. You may also be interested in interviews with health care providers. If you would like to contribute an article or suggest a topic, please contact us.
High-Risk Pregnancy and Bed Rest
- Caring for Your Mental Health During Your High-Risk Pregnancy While on Bed Rest by Dawn K. Gibson, LCSW
- Questions Every Pregnant Mother Should Ask About Preterm Birth by Darline Turner-Lee (NEW)
- Words of Wisdom from Mamas on Bed Rest by Darline Turner-Lee
- Pregnancy After Preterm Birth or Loss by Dr. Felicia Nash
While You’re in the NICU
- New to the NICU? 10 Questions to Ask! by Kathryn Whitaker (NEW)
- Bonding with Your Medically Fragile Baby in the Neonatal Intensive Care Unit by Dawn K. Gibson, LCSW
- Finding a Balance between NICU and Home by Erika Goyer
- Don’t Forget the Siblings: Ways to Support the Entire Family During a Hospital Stay by Khris Ford
- Grandparent Perspectives on Life in the NICU by Kelli Kelley
- Nana in the NICU by Mary Dudley
- The Night I Met My Son by Mike Kelley
Emotional Support
- Coping with Developmental Assessments by Katrina Moline (NEW)
- For the Love of Cameron – Siblings and Their Needs by Laura Romero (NEW)
- Redefining a Special Needs Child by Bea Smith (NEW)
- Breathing In Well-Being and Renewal by Rhonda McMahon
- Everything is Together, Why am I Falling Apart: Jackson’s First Birthday by Kelli Kelley
- The Agony of a Deep Freeze Thaw by Carol Ramsey
- The Edge of September by Kasey Mathews
- The Four Areas of Self-Care by Rhonda McMahon
- The Night I Met My Son by Mike Kelley
Caring for Your Mental Health
- Knowing the Signs of Postpartum Depression by Dr. Felicia Nash (NEW)
- Understanding PTSD: When the Stress of the NICU Persists by Dr. Blaine Carr
- Caring for Your Mental Health During Your High-Risk Pregnancy While on Bed Rest by Dawn K. Gibson, LCSW
- Finding a Professional Counselor by Erika Goyer
- Re-Entry by Kasey Mathews
Feeding & Nutrition
- Human Milk Saves Babies, Reduces Complications by Neven Simpson
- The Gift of Human Milk by Kelli Kelley
- NICU to Home: A Perspective on Feeding Difficulties by Anne Boon
- What Does a Dietitian Do? (NEW)
- What Does a Lactation Consultant Do?
- Tips for Increasing Your Milk Supply and Improving Your Pumping Success – by Kay Needles Gregorio
- Picking the Formula that is Right for Your Child’s Unique Nutritional Needs – Formula Comparisons and Details – by Leslie Ivey
Your Child’s Health
- Now I Know – An RSV Story by Kasey Mathews (Includes Video)
- RSV 101: What Every NICU Parent Needs to Know (Includes Video) by Kelli Kelly and Amy Carr
- Tips to Stay Well During RSV Season by Dr. Sel Unite
- Safe Sleep and Your Baby by SafeKids Austin and the Travis County Medical Examiner (NEW)
- Plagiocephaly: The 411 by Kathryn Whitaker (NEW)
- Summer Health & Safety: Baby! It’s Hot Outside by Priya Shankar and Veena Krishnan
Your Child’s Development
- Meeting Our Children’s Developmental Needs: One Step at a Time by Erika Goyer
- What to Expect at Your First Pediatric Therapy Appointment by Erika Goyer and Kimberley Johnson
- Coping with Developmental Assessments by Katrina Moline (NEW)
- What to Do if You Suspect Your Child Has a Learning Disability Part One: Birth to Age Three by Erika Goyer
- What to Do if You Suspect Your Child Has a Learning Disability Part Two: Age Three and Up by Erika Goyer
- Redefining a Special Needs Child by Bea Smith (NEW)
- The Relationship Between Prematurity and ADHD by Dr. Dina O’Brien
Meet the Provider- Interviews with health care providers, therapists and specialists
- What Does a Dietitian Do? (NEW)
- What Does a Lactation Consultant Do?
- What Does a Speech Language Pathologist Do?
- What Does a Child Life Specialist Do?
- What Does an Occupational Therapist Do?
- What Does a Physical Therapist Do?
Insurance and Your Finances
- How to Pay for Your NICU Stay (Texas Edition) by Erika Goyer
- How to Pay for Your NICU Stay (National Edition) by Erika Goyer
- Navigating Claims, Explanation of Benefits and Insurance Companies by Kathryn Whitaker
- Seeing Another Specialist? Reduce Your Paperwork by Marty Barnes
- Appealing Denials for Synagis Shots (near bottom of article)
Education and Advocacy
- Advocating for Your Kids: How to Win Friends and Influence Providers by Erika Goyer
- What to Do if You Suspect Your Child Has a Learning Disability Part One: Birth to Age Three by Erika Goyer
- What to Do if You Suspect Your Child Has a Learning Disability Part Two: Age Three and Up by Erika Goyer
- The Squeaky Wheel: The Tactics (and Pitfalls) of Advocating for Your Kids in School by Kim Pleticha
- The Spirit of Inclusion – Embracing Special Needs Kids in the Classroom by Jennifer VanBuren
- Inclusion and Halloween: Making Halloween Accessible to All Children by Angela Wright
Bereavement and Grief
- How Many Children Do You Have? by Kelli Kelley
- Questions About Heaven by Keira Sorrells (NEW)
- Finding Purpose After Infant Loss by Elaine Jones
- Six Tips to Cope with Grief During the Holidays by Erika Goyer
- Ways to Remember Your Baby During the Holidays by Erika Goyer
- After the Loss: A Dad’s Perspective on What Helps…
and What Doesn’t by Robert Goyer - Do I Need Support? What Peer Support Has Meant to Me by Erika Goyer
en Español
- Su Bebé y el Sueño Seguro de SafeKids Austin and the Travis County Medical Examiner
- Cómo pagar por su estadía en la NICU (Texas)
Tributes
The Lighter Side
- The Case for Siblings – For and Against by Clay Nichols
- Modesty in the NICU, A Proposal by Clay Nichols
