Our online repository of articles is designed to support you no matter what stage of the journey you are on with your child now. Whether you’ve been placed on bedrest, have a child currently in the NICU, have a child who has graduated from the NICU years ago or are grieving a loss, we hope this information, organized by topic, will provide timely information and perspective to help you move forward in the care of yourself, family and your precious child. You may also be interested in interviews with health care providers. If you would like to contribute an article or suggest a topic, please contact us.
Emotional Support
- Bonding with Your Medically Fragile Baby in the Neonatal Intensive Care Unit by Dawn K. Gibson, LCSW (NEW)
- Breathing In Well-Being and Renewal by Rhonda McMahon
- Do I Need Support? What Peer Support Has Meant to Me by Erika Goyer
- Don’t Forget the Siblings: Ways to Support the Entire Family During a Hospital Stay by Khris Ford (NEW)
- Everything is Together, Why am I Falling Apart: Jackson’s First Birthday by Kelli Kelley
- Finding a Balance between NICU and Home by Erika Goyer
- Finding a Professional Counselor by Erika Goyer
- Grandparent Perspectives on Life in the NICU by Kelli Kelley (NEW)
- Nana in the NICU by Mary Dudley
- Re-Entry by Kasey Mathews
- The Agony of a Deep Freeze Thaw by Carol Ramsey
- The Edge of September by Kasey Mathews
- The Four Areas of Self-Care by Rhonda McMahon (NEW)
- The Night I Met My Son by Mike Kelley
- Understanding PTSD: When the Stress of the NICU Persists by Dr. Blaine Carr (NEW)
- Words of Wisdom from Mamas on Bed Rest by Darline Turner-Lee
Bereavement and Grief
- How Many Children Do You Have? by Kelli Kelley
- Six Tips to Cope with Grief During the Holidays by Erika Goyer
- Ways to Remember Your Baby During the Holidays by Erika Goyer
- After the Loss: A Dad’s Perspective on What Helps…
and What Doesn’t by Robert Goyer
Development
- Meeting Our Children’s Developmental Needs: One Step at a Time by Erika Goyer
- What to Expect at Your First Pediatric Therapy Appointment by Erika Goyer and Kimberley Johnson
- The Relationship Between Prematurity and ADHD by Dr. Dina O’Brien
Education and Advocacy
- Advocating for Your Kids: How to Win Friends and Influence Providers by Erika Goyer
- Inclusion and Halloween: Making Halloween Accessible to All Children by Angela Wright
- The Squeaky Wheel: The Tactics (and Pitfalls) of Advocating for Your Kids in School by Kim Pleticha
- The Spirit of Inclusion – Embracing Special Needs Kids in the Classroom by Jennifer VanBuren
- What to Do if You Suspect Your Child Has a Learning Disability Part One: Birth to Age Three by Erika Goyer
- What to Do if You Suspect Your Child Has a Learning Disability Part Two: Age Three and Up by Erika Goyer
Medical/Health
- Honoring Dr. Mary Ellen Avery – Surfactant Therapy Pioneer
- Human Milk Saves Babies, Reduces Complications by Neven Simpson
- Meet the Provider- Interviews with health care providers, therapists and specialists
- NICU to Home: A Perspective on Feeding Difficulties by Anne Boon
- Now I Know – An RSV Story by Kasey Mathews (Includes Video)
- Pregnancy After Preterm Birth or Loss by Dr. Felicia Nash
- RSV 101: What Every NICU Parent Needs to Know (Includes Video) by Kelli Kelly and Amy Carr
- Summer Health & Safety: Baby! It’s Hot Outside by Priya Shankar and Veena Krishnan
- Tips to Stay Well During RSV Season by Dr. Sel Unite
- The Gift of Human Milk by Kelli Kelley
Finance/Insurance
- How to Pay for Your NICU Stay (Texas Edition) by Erika Goyer
- How to Pay for Your NICU Stay (National Edition) by Erika Goyer (NEW)
- Cómo pagar por su estadía en la NICU (Texas)
- Navigating Claims, Explanation of Benefits and Insurance Companies by Kathryn Whitaker
- Seeing Another Specialist? Reduce Your Paperwork by Marty Barnes
- Appealing Denials for Synagis Shots (near bottom of article)
Tributes
The Lighter Side
- The Case for Siblings – For and Against by Clay Nichols
- Modesty in the NICU, A Proposal by Clay Nichols
