Mighty Triplet Threat

Cole, Caleb and Reagan ~ Super Hero Alias: Mighty Triplet Threat

Cole, Caleb & ReaganAge: 4 months old
Weight at birth: 3 lbs
Weeks gestation: 32 weeks 3 days
Time in the NICU: 33 days

Why Should Your Children Be Recognized as Preemies of the Year?

They say that having a child changes everything. When we found out we were pregnant with triplets, we knew our lives were forever changed. But, at 13 weeks into my pregnancy, I never imagined our babies would be in for the fight of their lives.

A routine ultrasound left us panicked with these words – Twin to Twin Transfusion Syndrome (TTTS). It broke my heart to learn that my identical boys had to struggle to grow and survive until their birth day. This transfusion syndrome caused Caleb to have decreased blood volume, slower than normal growth, and little to no amniotic fluid. Cole became overloaded with blood. The excess blood put a strain on Cole’s heart to the point that we watched him daily for heart failure, and too much amniotic fluid. We sat motionless when we were told that there was an 80%-90% chance one or both boys would not make it to be born, and even if they did, they may have severe problems.

We met with surgeons about options, but were denied surgery due to the impact on the boys’ triplet sister. We chose an amniotic fluid reduction to lessen the strain on Cole’s heart. After daily ultrasounds, over 2 months of hospital bed rest, and two rounds of magnesium to stop labor – the day finally came when we could not find Cole’s heartbeat. We had an emergency C-section and watched as our 3 pound miracles fought to get off oxygen, move past IV food, and grow.

If I had to pick a super hero power for my little fighters, we would say – Mighty Triplet Power! Looking back I was terrified to have triplets, and often referred to them as the “Triple Threat.” However, it was this Triplet Power that educated us on Twin to Twin Transfusion Syndrome, and blessed us with so many connections and friendships. We were blessed with resources three times over. I was welcomed with open arms to a group of over 50 Detroit area triplet moms. Best of all, I was connected to another triplet mom in our NICU “pod.” When you have triplets, and see them fighting a disease that only 15% of identicals get, you feel that no one else can understand. Looking back – Triplet Power was able to connect me to a world of strong mamas who do “get it.” Looking at our healthy 4 month old triplets today, I know their Mighty Triplet Powers will keep them strong. Yes, having triplets has meant triple the diapers, crying, and well . . . NO sleep. But, when I think of all that these babies went through – my heart cannot contain the love I have for each of my 3 babies. So, here’s to Mighty Triplet Power! It got us this far, and I know it will continue to connect us to people and places we never would have seen, had it not been for them making it in to this world.

Using Three Or More Characteristics of a Super Hero, Please Describe Your Children.

Small but Mighty, Brave, Super Smart!

What advice do you have for future NICU parents?

Take one day at a time.  When you think you can’t, you can.  Take care of yourself.  You cannot do everything.  Stand up for what you believe in/listen to your instincts.  Have hope.  Your love is enough.

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Darren Michael

Darren R. ~ Super Hero Alias: Darren Michael

Darren RAge: 2 years
Weight at birth: 5 lb, 15 oz
Weeks gestation: 32 weeks
Time in the NICU: 7 days

Why Should Your Child Be Recognized as Preemie of the Year?
When Darren was born, we were so scared and didn’t know how sick he was. I have never been so scared in my life. The first time I got to hold him was 3 days after he was born, He was a fighter and everyday he got stronger we had are ups and downs while he was in the NICU but now you would never know. He is a smart, strong, handsome little man! He deserves everything. He gave us the strength to keep going and to never give up.

Using Three Or More Characteristics of a Super Hero, Please Describe Your Child.

Fighter, strong, brave

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Little Blessing

Trinity P. ~ Super Hero Alias: Little Blessing

Trinity PAge: 9 months
Weight at Birth: 5lbs 2oz
Weeks Gestation: 32 weeks
Time in the NICU: 36 days

Why should your child be recognized as “Preemie of the Year”?

Right around the time I was gestationally 21 weeks old my Mommy found out that she might have pregnancy conditions called placenta previa and placenta accreta. Her Doctor said that she was early in the pregnancy, things could change and that she shouldn’t worry about it. Low and behold 5 days later Mommy woke up early one morning hemorrhaging. Meeting the ambulance and being rushed to the hospital was the start of a very courageous battle for the both of us. When Mommy got to the hospital she was immediately given her first dose of steroids as well as all the other meds to keep me inside and developing. The Doctors were so nice and encouraging. They set my Mommy’s goals very low and said, each day that you can keep the baby inside really does matter and help the baby beat even more odds. This continued for weeks and included a couple of trips to the L&D ward. I came very close to being born on several occasions.

The day came for me to be delivered and Mommy had to undergo a very bad and complex surgery. She couldn’t see me for several days and when she finally could see me she was so sick that she could only come in for 20 minutes once a day.

I had a really hard time keeping my body temperature, eating and keeping my eyes open.

After spending about 6 weeks in the NICU the day finally came for Mommy to take me home. She had never even had the opportunity to hear me cry, change my clothes or bath me. She was still so sick that our journey home was not only hard on me, but hard on Mommy as well.

God Blessed Mommy and Me. We had a terrific team of doctors, nurses, staff, friends and family that helped us make it each and every day at the hospital and after. Mommy and I beat the odds! It is very likely that had we not have had great doctors and great facilities we wouldn’t be here today. We made it through very tough times and are both here today to be “Modern day Miracles.”
I have had a lot of Doctors and Therapists work with me. Recently they told Mommy “Who would have thought that the small, frail, lethargic baby that you brought home would have turned into this little healthy 20lb chunk?” God knew what he was doing when he sent me to my Mommy. She never gave up and has helped me to roll over, sit up, crawl, walk, eat and squeal.

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Ian Man!

Ian S. ~ Super Hero Alias: Ian Man!

Ian S

Age: 8.5 years
Weight at Birth: 1 lb. 12.4 ounces
Weeks Gestation: 32 (26wks IUGR)
Time in the NICU: 45 days (about 5.5 weeks)

Diagnosis, complications, surgeries?

Multiple blood transfusions, Apnea of prematurity, Bradycardia, PICC line, Reflux, first head scan IUGR, Apnea, Bradycardia, patent ductus arteriosus (PDA), Double Hernia Surgery at 4 months – age 3 diagnosed with: ADHD, asthma and febrile seizure

Why should your child be recognized as “Preemie of the Year”?

Ian was nicknamed by the nurses and Doctors in the hospital as “Small but Mighty.” For only being 1 pound 12.4 ounces and 13 inches long he made a huge impact on all who met him. How a little baby boy can show such charisma and personality at his size was beyond me, but he did. One morning we came in to kangaroo with him and the nurse mentioned that the night before Ian had traveled the inner circumference of his isolette while strapped down in his little snuglie. She had never seen a micropreemie do so! We had so many ups and downs in and out of the hospital but his strength and attitude always inspired us.
When Ian was about to turn two and wasn’t walking, we were concerned. We met up with a physical therapist that worked with him doing visceral stimulation and Ian was walking within 12 hours. No, not walking, excitedly doing laps from our sofa to our door; back and forth for at least 20 minutes. He was giggling with excitement the whole time.

Ian has had a rough road with his asthma. We’ve had more ER visits than we could count as well as two 911 calls. Each time he held no ill will to the nurses or doctors; he would smile and work his charm. He views the hospital as a fun place which amazes me considering all he has been through.

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Mommy’s Little Angels & Daddy’s Little Princesses

Olivia and Isabella B. ~ Super Hero Alias: Mommy’s Little Angels & Daddy’s Little Princesses

Olivia and Isabella BAge: 2 years old
Weight at Birth: 3 lbs each
Weeks Gestation: 32 weeks
Time in the NICU: 2 months

Why should your children be recognized as “Preemies of the Year”?

Imagine, if you will, a warm day in the El Paso desert. The wind is rolling off Franklin Mountain like a downward facing fan, spinning the sand upwards in a tornado-like spiral. It is late August and the twins weren’t due until October. Every day of the pregnancy until that point, until that warm August day in the desert, was anything but normal. The morning sickness was twice as sickly, the swollen legs and back were less than tolerable. The food cravings were twice as much and twice as weird. The day mommy and daddy B’s day would change forever was not much different, as a matter of fact it twice as scary.

We had two sons before the twins were born, and even though those pregnancies were less than normal, nothing could prepare us for the journey of birthing twins. This particular day was omniscient. Daddy came home from working all day as an 88M, Motor Transport Operator, for the United States Army to hear Mommy say, “My back hurts!” Could you imagine what this man of hers replies with? “Yep, you’re in labor!” Like a comedian telling a bad joke. Against mommy’s maternal instincts, she let him take her to the hospital where the doctors determined she was in fact four centimeters dilated and indeed in labor. The problem was she has only been pregnant for 32 weeks. “It’s too early”, she thought. But, they were ready to enter the world. So, on the 23rd of August, 2009 at exactly 8:23 in the morning, Olivia Grace and Isabella Karen were born. Yes, you read that right, they were born on 8-23 at 8:23. Those numbers would prove to be a blessing for the B. household.

The sad part of this story is that the three pound twin girls would spend the next two months in the Neonatal Intensive Care Unit (NICU) undergoing vigorous treatments to keep them alive so they could finally come home with their parents. Mommy and Daddy had to gather all their strengths in their bodies and hearts to trust the doctors to take care of their precious gems. It was a long arduous journey, day in and day out at the NICU. However, the little ladies finally were healthy enough to come home to meet their brothers and live a lifetime of happiness and joy at home.

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Powerful Pnut

Christian J. ~ Super Hero Alias: Powerful Pnut

Christian JAge: 7 years
Weight at Birth: 3 lbs, 2 oz
Weeks Gestation: 32 weeks
Time in the NICU: 40 days

Diagnosis, complications, surgeries?

He has had heart surgery for Tetralogy of Fallot and has had a trach. Also has had multiple surgeries.

Why should your child be recognized as “Preemie of the Year”?

He has overcome so much. Not only has he had a ton of different surgeries, but he has such a rare chromosome deletion that he is the ONLY person in the whole entire world EVER with this particular deletion. Because of this, his doctors can’t predict his future since they know nothing about this. His doctors are writing a paper on him to get published so he will be in medical textbooks. He will eventually get a syndrome named after him. He still has a long road ahead but is doing great. He has developmental delays and dyspraxia. He is a very special and unique child and my living miracle! His doctors said he might never walk or talk, and he does both. He’s extremely intelligent and the most loving child. There were many times that he came very close to death. I know that God has a special plan for his life!

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Mighty Mykah

Mykah T. ~ Super Hero Alias: Mighty Mykah

Mykah TAge: 2 years old
Weight at Birth: 1 lb 5 oz
Weeks Gestation: 32 weeks
Time in the NICU: 106 days

Diagnosis, complications, surgeries?

Mykah was born at 32 weeks but was diagnosed with Intrauterine growth restriction (IUGR) and was the size of a 24 weeker. At 17 days old she was diagnosed with Necrotizing Enterocolitis, usually called NEC, is a condition where the intestines become infected and can begin to die. At only 17 days old she had her first surgery to try to have the bowel drain. At 2 pounds she had her second surgery, a Colostomy and had ostomy bag placed that had to be carefully monitored. After waiting till she finally reached 4 pounds she had her 3rd and final surgery to repair the bowel. After the 106 long days in the hospital, she was finally sent home a healthy (although small) 3 and half month old little girl.

Why should your child be recognized as “Preemie of the Year”?

Mykah should be recognized as preemie of the year because her smile is contagious and can make you fall in love with her with just one look in her eyes. She is just the most happy and sweetest little girl. She loves to be around people and makes sure to say “Hi” to everyone she meets; she truly lights up a room. Her personality is so big, you can honestly forget how small she is. If it was up to Mykah everyone would be singing and dancing instead of doing anything else.

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Courageous Camryn

Camryn E. ~ Super Hero Alias: Courageous Camryn

Camryn EAge: 10 years
Weight at Birth: 4 pounds 4 ounces
Weeks Gestation: 32 weeks
Time in the NICU: 25 days

Diagnosis, complications, surgeries?
Healthy all around she just couldn’t leave the NICU until she could keep her own body temperature without the incubator, and she had to learn to suck.

Why should your child be recognized as “Preemie of the Year”?

She’s a little firecracker with a strong will – I strongly believe it’s what carried her through everything after she was born. It helped her fight to come home and I know it’ll help her make it through her life. To add to that she’s always been very animated in her expressions and ways of doing things. She loves writing short stories and drawing her own pictures. She wants to be an author and illustrator when she grows up (if she’s not a veternarian because of her love for animals). She’s our little blessing!
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Baby John

NICU Reunion, Family Celebration, Hand to Hold Birthday, Photo Contest

John L. ~ Super Hero Alias: Baby John

John LAge: 1 year old
Weight at Birth: 4 pounds 7 ounces
Weeks Gestation: 32 weeks
Time in the NICU: 4 weeks

Diagnosis, complications, surgeries?
Placental Abruption with Emergency C-section, Down’s Syndrome-Trisomy 21, Hypotonia (low-muscle tone), Adenoid removal surgery, Plagiocephaly (flat head syndrome)

Why should your child be recognized as “Preemie of the Year”?
John Ryleigh has fought for his life from week 4 of gestation, with a very complicated pregnancy.This angel was determined to come early and grace us with his presence.He survived a placental abruption with an emergency c-section. JR was diagnosed with Down’s Syndrome and was struggling with his hypotonia. He became a superbaby in the NICU fighting to accomplish everything quickly,so he could go home and be with mommy and daddy just after 4 wks. Now,1 year old, JR has been seen by 9 specialists, to clear him of any future problems. He fights to gain strength at PT & OT weekly & accomplishes more and more each day. He is the most determined child,who tries to crawl before he can hold his head up,who tries to walk before he can sit.Anyone who meets John Ryleigh is awarded the biggest and brightest smile ever seen! He is the happiest lil angel & will be proud to show you. JR is always remembered and becomes famous whereever he goes!.

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The Fabulous Three

NICU Reunion, Family Celebration, Hand to Hold Birthday, Photo Contest

Logan, Maddyn, & Mackenna U. ~ Super Hero Alias: The Fabulous Three

Mackenna, Logan, and Maddyn U.Age: 18 months old
Weight at Birth: 4lbs 5 oz, 3 lbs 3 oz, 2 lbs 15 oz
Weeks Gestation: 32 weeks
Time in the NICU: 30-38 days

Why should your child be recognized as “Preemie of the Year”?

We were born at 32 weeks because our Mommy just could not keep us in any longer!  Our Mommy and Daddy were so excited to finally see us and they cried A LOT those first few weeks.  We mean it, they were a mess.  They came to the NICU every day and held us and told us that we were strong and we were fighters, and that we could make it through the rough patches.  Finally we were able to come home from the NICU and boy, were we excited!  We had so much to learn that we tried to stay up all night for MONTHS!  We had a lot of 4:00 am parties.  We are so blessed to be triplets, and our Mommy and Daddy thank God every day that He made us a family.

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Site last updated May 21, 2013 @ 9:13 pm