Princess Spencer

Spencer M. ~ Super Hero Alias: Princess Spencer

Spencer MAge: 21 months
Weight at Birth: 3 lb 1.2 oz
Weeks Gestation: 28 weeks
Time in the NICU: 56 days

Diagnosis, complications, surgeries?

Atrial septal defect (ASD, hole in the upper chamber of her heart); Jaundice; bradycardia; anemia; two neurological cysts/bleeds

POST-NICU: Respiratory syncytial virus (RSV)

Why should your child be recognized as “Preemie of the Year”?

My daughter’s surprising birth occurred during the (estimated) 28th week of gestation. She came into the world as we were rushed into the delivery room and before any doctors were present, and then was rushed into the NICU before the neonatologist arrived. Spencer faced a lot of challenges and almost lost her life more than once, but constantly battled back and came out stronger. After 56 days in the NICU she was released, but after only 19 days home—and due to our former pediatrician’s office failure to order Synagis—she developed RSV and was hospitalized once again, this time in the pediatric ICU. After everything she fought in the NICU and beat, Spencer now was on a ventilator and clinging to life. Nine days later she beat RSV too, and has been home ever since.

The doctors who first met Spencer had little hope that she’d live. “We’ll see” was the best prediction they would give her, but she has proved every doctor who has doubted her wrong. By the time she was a year, Spencer was walking, talking, forming sentences and advanced farther than a lot babies her age.

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Resolute Rowan

NICU Reunion, Family Celebration, Hand to Hold Birthday, Photo Contest

Rowan S. ~ Super Hero Alias: Resolute Rowan

Rowan SAge: 8 weeks
Weight at Birth: 2 lbs 9 oz
Weeks Gestation: 28 weeks
Time in the NICU: 48 days

Diagnosis, complications, surgeries?

No surgeries or complications while in the NICU, however Rowan has an ASD and will need open heart surgery to correct it within the year.

Why should your child be recognized as “Preemie of the Year”?

After a long year of trying to conceive, my husband and I decided to try IVF.  After the egg retrieval, I was diagnosed with OHSS and could not move forward with the transfer.  After another month of waiting, we re-started the injections and I had the transfer.  Sixteen days later we found out I was pregnant and after another month we found out it was twins!  At 16 weeks, the ultrasound showed two beautiful baby boys.

On September 3, 2010 I experienced unexplained preterm labor and the boys were delivered immediately via emergency c-section.  They both came out screaming and started the good fight from the first second.

I believe that all preemies are true miracles and are born to fight.  I believe that Rowan should be recognized as Preemie of the Year because he is an extraordinary example.  I feel that we should share our experiences with our preemies… the good, the bad, the tears shed, the questioning of faith, the indescribable joy, etc.  There is a connection between preemie parents – I have come across the most selfless, caring people (many complete strangers) along this journey with my boys, and I would love to continue to pay it forward.  Rowan has not only brought so much joy to my life, but has also reminded me of the amazing good in people.

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Giadalicious

NICU Reunion, Family Celebration, Hand to Hold Birthday, Photo Contest

Giada M. ~ Super Hero Alias: Giadalicious

Age: 4 years old
Weight at Birth: 4 lbs 1 oz
Weeks Gestation: 33 weeks
Time in the NICU: 20 days

Diagnosis, complications, surgeries?
Grade 3 Brain Hemorrhage; Mild Hip Dysplasia; Atrial Septal Defect; Failure to Thrive; Acid and Bile Reflux; Multiple Infections of Rotavirus, Pneumonia, Influenza, Whooping Cough, and Croup; Food Allergies, Open Heart Surgery June 2, 2009, Broken Arm.

Why should your child be recognized as “Preemie of the Year”?

Giada and her friend Callia should be recognized because:

Once upon a time, there were two tiny babies that didn’t have the chance to be fully baked–they were born two months early. Though this was truly hard for everyone that loved them, this was the best thing that ever happened to them–Callia and Giada became best friends forever.

Due to their prime real estate in the NICU and their naughty little behaviors like pulling gavage feeding tubes out of their noses, they formed the NICU NAUGHTIES. With their super preemie powers, they could battle anything like overcoming major illnesses and leaving the hospital before their due dates!

These two super preemies are tough, yet ready to love wholeheartedly! Come on and show some preemie love, they will fight for you!

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Amazing Grace

NICU Reunion, Family Celebration, Hand to Hold Birthday, Photo Contest

Natalie F. ~ Super Hero Alias: Amazing Grace

Age: 6 months old
Weight at Birth: 1 lb 13 oz
Weeks Gestation: 26 weeks
Time in the NICU: 104 days

Diagnosis, complications, surgeries?
Placental Abruption. Level II brain bleed, Atrial Septal Defect (ASD), High Blood Pressure.

Why should your child be recognized as “Preemie of the Year”?

As we think about Natalie’s journey in the NICU we have nothing but thankfulness for this perfect and precious life. Through her birth, growing and surviving we have learned a lot about our family and our hearts. Through God, Natalie was able to touch the hearts of many people in our community, church, family and strangers. We have been home now for over two months and continue to hear about how God is moving through the story of a tiny, spunky and strong miracle that blessed our family. God has shown us through Natalie’s journey what really matters in life and how we are able to persevere through hard, uncertain times with the help of Him and the community of people he places around you. She has provided us the opportunity to love and live our lives like never before. We are better parents to her, Grant her big brother and Olivia, her big sister having gone through this. <3

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Site last updated May 21, 2013 @ 9:13 pm