by Stephanie Goley | Jul 11, 2014 | Life after the NICU, Medical Info & Resources
Recently, I flew from Massachusetts to Texas with my son. He was one of 30 children taking part in a clinical trial at the University of Texas. This is a pretty cutting edge study in the US for kids with cerebral palsy, and he was “lucky” enough to be chosen. Deciding...
by Stephanie Goley | Apr 25, 2014 | Emotional Health, Inspiration
My oldest son is 8 years old. He is a happy, social boy who loves to be around people, enjoys attention, music and being active. He is also non-verbal, unable to walk, and has limited communication skills. Despite this, it is very obvious that social interaction is...
by Stephanie Goley | Nov 15, 2013 | Life after the NICU, Medical Info & Resources
If you have ever had a discussion with someone about whether or not they vaccinate their children, you know that it can be quite heated. People can become very defensive and righteous about their opinion on this subject. How I see it, both sides of the debate are...
by Stephanie Goley | Sep 4, 2013 | Inspiration, Life after the NICU
In honor of World Cerebral Palsy Day today, September 4, I am requesting a call to action for all parents of children with CP. I am urging all of you to get on the advocacy bandwagon. I know we are all tired, worn out, and lack time and energy, but this is too...
by Stephanie Goley | Jul 10, 2013 | Life after the NICU, Medical Info & Resources
As a military family, we are likely to be transferred every three to four years. Having a child with significant special needs can make this a daunting task. Since our seven year-old son was born we have moved only twice, but have learned many important lessons. Our...
