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Episode 119: Life After a Heart Transplant

December 4, 2024

Guest: Kasie Marek, Hypoplastic Left Heart Syndrome mom

From there to here. When Kasie Marek’s son received a heart transplant after a long and difficult medical road of treating his hypoplastic left heart syndrome (HLHS), she had no idea what lay on the other side of treatment. Listen as Kasie shares their honest journey and what she’s learned in this season’s final episode.

In this episode, we chat about:

- What is HLHS?
- The process of waiting for a heart like and reconciling the grief (and joy) of receiving a heart
- What hope would you like to give another family waiting for a transplant?

About the guest

Kasie Marek, Hand to Hold NICU Babies Parent Support podcast

Kasie Marek is a medical mom trying to figure it all out, one day at a time. A two-time childhood cancer survivor who entered the “nurse” mom world after her first-born, Noah, was born with Hypoplastic Left Heart Syndrome (HLHS). Now, she’s trying to navigate the everyday life of medical to-do lists, while still being a MOM, WIFE, and prioritizing self-care.