by Leigh Ann Torres | Nov 7, 2022 | Family Stories, Medical Info & Resources
This article is sponsored by Neotech. For NICU mom Teresa, news that her daughter, Teigan, needed a tracheostomy came after her family had already been in the NICU for three months. Teigan was born with an omphalocele, a condition in which some of her abdominal...
by Guest Blogger | Aug 31, 2012 | Family Stories, Life after the NICU
There are more than 6,000 rare diseases in the world, and approximately 1 in 2,000 people have been diagnosed with one. Every person and/or family affected by rare disease is different in their own way, but we all share the same problem: we are “rare” and often even...
