by Leigh Ann Torres | Nov 7, 2022 | Family Stories, Medical Info & Resources
This article is sponsored by Neotech. For NICU mom Teresa, news that her daughter, Teigan, needed a tracheostomy came after her family had already been in the NICU for three months. Teigan was born with an omphalocele, a condition in which some of her abdominal...
by Shoshana Koch | Jun 3, 2015 | Medical Info & Resources, NICU Life
While on three-day hospital bed rest with PPROM, I researched what was required to create a breast milk supply under these circumstances: our son was going to be an extremely low birth weight, premature, and sick baby. He would be separated from me at birth,...
by Shoshana Koch | Feb 16, 2015 | Life after the NICU, Medical Info & Resources
Luca was born at 26 weeks, 5 days. We were permitted to see our newborn briefly after his birth, once all life-sustaining equipment had been placed. Our baby was thirteen weeks premature and out of my womb. We weren’t even thinking about his homecoming. His...
by Guest Blogger | Aug 31, 2012 | Family Stories, Life after the NICU
There are more than 6,000 rare diseases in the world, and approximately 1 in 2,000 people have been diagnosed with one. Every person and/or family affected by rare disease is different in their own way, but we all share the same problem: we are “rare” and often even...