Travis A ~ Super Hero Alias: ~ Super T Man ~
Age: 12 months
Weight at birth: 2 lbs 11 oz
Weeks gestation: 28 weeks
Time in the NICU: 68 days
Diagnosis, surgeries, complications?
My son was diagnosed with low birth weight, severe anemia, grade III IVH bilateral bleed meaning both sides, PVL, cyst in right ventrical, Hydrocephalus. He has had 8 blood transfusions and has had four TAPs done (a surgery to withdraw extra fluid off brain), GERD, and ROP. He has therapy every week.
Why Should Your Child Be Recognized as Preemie of the Year?
Why should my son be Preemie of the Year is because he has overcome so much that the doctors didn’t think he would be able to do. Being diagnosed with Grade III bilateral bleed, pvl on both sides of the brain, cyst inside the ventricle, and hydrocephalus, there was some doubt that he wouldn’t be able to walk or talk. But with u/s weekly until we left the nicu then CT’s month (still going for them) the ventricles have enlarged a little but not much. So far no shunt (a device to drain extra fluid off brain) hasn’t been needed to be placed. He has proven the doctors wrong. He is sitting up, pulling up and trying to walk! He also started saying bye-bye as of yesterday (9-24-12). He’s a true miracle. I don’t want him to think he can never do anything in life because nothing compares to the NICU journey.
Using Three Or More Characteristics of a Super Hero, Please Describe Your Child.
Courageous- he faces prematurity everyday.
Determined- he’s determined to beat prematurity and everything doctors say he might not be able to do.
Brave- He fought for his life and is such a happy baby boy!
What advice do you have for future NICU parents?
God put you through it, he will walk you through it! I love that saying, its so true! Also mom’s and dad’s, take lots of pictures and videos. Remember you’re your child’s voice. Ask questions and don’t be afraid to ask again. Talk to other preemie moms and dads. They’ve been there they understand, don’t hold anything inside. Take care of your self.